Recent content by Dcwill61

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    Anyone started on Radivica yet? Use this thread to discuss access/ insurance

    Mine is 39 and my fvc is about 70%
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    Anyone started on Radivica yet? Use this thread to discuss access/ insurance

    I am mostly in chair. But can walk short distance with cane. Losing right hand function also as with right leg. Left side is still fairly healthy with no major muscle lose
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    Anyone started on Radivica yet? Use this thread to discuss access/ insurance

    I got my Radicava thru searchlight , who hooked me up with Heritige Biometrics. My Medicare covers their part then I get the rest free because of hardship. I have nurses come to house and give infusions. Heritige sends meds and supplies to house. If it would of been expense I wouldn't be doing...
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    Radicava YES or No

    I need other PALS advice. I've had 1st and 2nd infusion. Is this worth the port or is this drug not worth the time like Rilutek.
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    Anyone started on Radivica yet? Use this thread to discuss access/ insurance

    Got my Radicava delivered, was told it's all free and even our local nursing is free for home infusion. I to want port but will wait few months to see if any side effects. Hoping I maybe able to do self infusion but maybe impossible. I live alone have niece to help on her lunch but she not there...
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