Recent content by IcyPinkLemonade

  1. I

    Need Different meds, what should i do?

    I have been taking baclofen, 20mgs every 2hrs. Yrs I know that's a lot, and yes you may wonder how I can stand not sleep but I needed that much to cross the blood brain barrier. I feel really stiff, I have muscle spasams but they don't turn into pain from that. I'm just so stiff and it feels...
  2. I

    Sick and Tired of Being in PAIN

    So I am gonna try to post this in this forum too to see if I can get any more help/suggestions. I am currently being diagnosed with PLS. I have been clumbsy for many years, lots of broken bones, I currently have tilted ankles (too many sprains, the ligaments are loose) and am wearing two ankle...
    • IcyPinkLemonade
    • Thread
    • back baclofen bed botox cramps diagnosed fda fell heart hours mri muscle neurologist pain physical therapy please help please help me pls problems research spasms story testing tests therapy work
    • Replies: 2
    • Forum: Primary lateral sclerosis
  3. I

    Sick and Tired of being Sick and Tired - please help

    Well I don't have THAT many spasms. It mostly just pain. I mean I have a spasm in my leg or shoulder or arm every once and while but the baclofen WAS helping the pain in my upper back, and the heavyness/kinda numbness falling asleep feeling of my arms. But maybe because I am sad and I over...
  4. I

    Sick and Tired of being Sick and Tired - please help

    Thanks for the replies. First to tokahfang, I never THOUGHT about it being weakness, I just assumed it was a muscle cramp. That is a good point I can bring up to my doctor. Also when you mention that your hips lost structural stability that seems to be something common I am seeing on this...
  5. I

    Sick and Tired of being Sick and Tired - please help

    I am currently being diagnosed with PLS. I have been clumbsy for many years, lots of broken bones, I currently have tilted ankles (too many sprains, the ligaments are loose) and am wearing two ankle braces (I almost wrote braclets, I would rather they be jewlery than needed to walk...). Long...
    • IcyPinkLemonade
    • Thread
    • back baclofen bed diagnosed fell hours mri muscle neurologist pain physical therapy please help please help me pls problems story testing tests therapy work
    • Replies: 6
    • Forum: Primary lateral sclerosis
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