amx0035

  1. Bestfriends14

    AMX0035

    I have 3 months of the above because my husband couldn't deal with the side effects. That's too bad as now I have the meds sitting in my house collecting dust. How unfortunate.
  2. Bestfriends14

    Anyone else on AMX0035?

    Is anyone else taking AMX0035? If so, have you noticed any slowing of your progression? Also, what were your side effects and how long did they last? My husband has been on it only a few days, but his side effects are increased mucous shorty after taking ithe drink, lack of appetite, nausea, and...
  3. Aaronmandevill

    Diagnosed with respiratory onset ALS

    Hi everyone, I (36m) previously posted in DIHALS thread: Looking for advice Today I saw Dr. Wong who did extensive testing. We spent a very long time together, part of which he did some of his own research on respiratory onset since he wasn’t as familiar with its presentation. He agreed that...
  4. lgelb

    B-12 (methylcobalamin) injection trial

    The paper, based on work in Japan, is here. I can pick holes in the methods and limitations all day (perhaps most obviously, red urine is a clue that you are on study drug, not placebo, and that combines with the FRS score, the primary outcome measure, as subject to self-report), but they did...
  5. Nikki J

    Amx0035 expanded access

    https://clinicaltrials.gov/ct2/show/NCT05286372 this would be for pals ineligible to the trial. Criteria include weakness longer than 3 years. See link for more details
  6. S

    TUDCA in Europe, Netherlands

    Are thee any trust-worthy alternatives in The Netherlands / Europe to buying and shipping Nutricost TUDCA capsules from US? The issue with the latter is the cost and time it takes to ship it to NL.
  7. G

    UK/Ireland trials: tudca or amx0035

    Hello everyone We have been offered tudca as part of tricals. However with placebo would we be better just buying the drug ? or hold out for / buy amx0035? what do you think? Thank you
  8. Nikki J

    Amylyx filing in Canada

    https://www.businesswire.com/news/home/20210309005180/en/Amylyx-Pharmaceuticals-Plans-Regulatory-Filing-of-AMX0035-for-the-Treatment-of-ALS-in-Canada
  9. J

    CENTAUR (AMX-3500) - Phase 2

    Has anyone been a part of the this trail? 1 or 2? AMX0035 in Patients With Amyotrophic Lateral Sclerosis (ALS). I cant seem to find any results posted anywhere. Thank you
  10. Lkaibel

    Amx0035

    My husband has been approved for a trial of AM0035. Radicava and Rilutek can be used during the trial. It has just now this week received Orphan Drug status. My husband called because he googled Trials. Has anyone else heard of this?
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