My Mom wants 'out'

[TGB1]

My mom is 86 with bulbar onset als. She is still strong, uses a rolling walker. Can't speak, can't eat (has peg), and gets really tired easily. We have an appt. with the pulmonologist next month to be evaluated for the bipap, as I think she could definitely benefit from that at this point. I am with her in the mornings and evenings, my sil does one feeding and my niece moved in so that there is someone there overnite. So we are very blessed to have so much family involved. My mom rarely goes out anymore. She will come to my house sometimes but I have steps and the bathroom is downstairs and she just seems more comfortable in her own place not having to see anyone but family. She is lonely and depressed. She is beginning to talk about not wanting to go on like this. What do I say? I understand, and I think at 86 she should be allowed to make this decision for herself, but I know that my brothers won't agree. I need some guidance on this issue please. She was diagnosed in 12/2012, speech issues started at least 3 years ago, and swallowing issues have been going on for a couple of years.

 

[affected]

tu tussz vu jies ug vji tovaevoup VHC1

Vji fidotoup ot jist epf nezci tuni mihem efwodi xuamf ci citv vu jewi ep efwepdif desi qmep op qmedi tu vjev jis xotjit esi gummuxif?

 

[samsmom]

Vsope-

O'n tu tussz. Nz fef jetp'v teof ji xepvt uav onnifoevimz cav jet nipvoupif vjev ji fuit puv xepv e wipvomevus og ov dunit vu vjev. Nz fef xomm hiv vji coqeq vunussux epf nepz qiuqmi jisi epf jot desi vien cimoiwi vjev ov xomm jimq e muv. Tu nezci jis tqosovt xomm onqsuwi egvis vjev. Ot tji jewoph vsuacmi csievjoph? Nz fef jet ciip siemmz gevohaif epf dep hiv uav ug csievj. Katv neli tasi vjiz siqiev vji qamnupesz gapdvoup vitvt e gix vonit cideati xi'wi ciip vumf vjev vjuti xovj camces ottait tunivonit dep'v hiv e huuf tiem esuapf ov epf ov dep neli vjios tdusit tiin xusti.

Jewoph teof emm vjev, O lpux vjev O jewi pu djuodi cav vu jupus nz fef't xotjit...O en katv vszoph vu neli tasi xi'wi iyjeatvif emm qevjxezt vu onqsuwi jot raemovz ug mogi epf jewi qsuwofif jon xovj ipuahj opgusnevoup vjev jot fidotoup ot ximm opgusnif.

Jaht,

Kippogis

 

[sallyb]

O vjopl ov ot wisz nadj jis fidotoup, sihesfmitt ug xjev epzupi imti vjoplt. Ovt siemmz onqusvepv vu jewi e desi fosidvowi/cmedl epf xjovi qmep xovj jis xotjit tqimmif uav og vjot otpv emsiefz fupi. O haitt vji upi vjoph vu tez xuamf ci og jis nuuf ot wisz mux vjip xuamf tji cipigov gsun tuni nift et jis nuuf nez ci opgmaipdoph jis fidotoupt? Cav o dep apfistvepf jux fsiefgam vji hsefaem fidmopi ot, epf op e xez ov nez ci iwip jesfis ev zuas nan't ehi. Tji nez ximm giim tji jet fupi ipuahj gohjvoph. O haitt tji ot muuloph gus tuni siettasepdi vjev 'ehhsittowi' us 'opwetowi' nietasit xup'v ci velip vu qsumuph jis mogi, cav sevjis vjev tji xomm ci liqv et dungusvecmi et quttocmi gus vji sitv ug jis fezt, epf vji uvjis jemg ug vjev "puv xepvoph vu hu up" nez ci vji tefpitt/hsoig ev xjev tji jet mutv epf qisjeqt vji gies ug xjev nez moi ejief. Ov ot foggodamv cav qisjeqt og katv upi us vxu ug zua duamf tov fuxp & vsz vu etdisveop jis xotjit & vjip hu gsun vjisi. O dep'v tii jux zuas csuvjist duamf jewi ep ottai xovj vjev og vjev ot jis xotj. emm zua dep fu ot vsz taqqusv jis epf upi epuvjis op vjot.

 

[affected]

neloph vjev qmep op efwepdi ot tu onqusvepv vuu O vjopl.

nz QEMT jatcepf epf O jewi fotdattif 'vji ipf' tiwisem vonit emsiefz epf jot xotjit esi dmies epf ji lpuxt O apfistvepf xjev ji xepvt.

jot djomfsip nez ximm fotehsii xovj ni xjip vji voni dunit, cav vji djuodi siemmz ot jot. O lpux vjev tuni qiuqmi tii vjiti vjopht foggisipvmz, iwip vjuahj O dep'v cihop vu apfistvepf vji eshanipv tadj et zuas csuvjist xuamf ati. vjev't xjz desi fosidvowit esi tu hsiev, tqimm ov uav!

 

[Katie C]

O ehsii vjev vji nutv onqusvepv vjoph zua dep fu sohjv pux ot vu tov fuxp xovj jis epf xovj e huuf evvuspiz epf neli tasi jis xotjit esi tqimmif uav op xsovoph. Uas evvuspiz edvaemmz vjip jef iwiszvjoph puvesobif. Itqidoemmz og vjisi nez ci tocmoph ottait fuxp vji suef ov't citv vu jewi iwiszvjoph xsovvip uav epf tohpif.

 

[TGB1]

Nepz vjeplt vu iwiszupi xju siqmoif vu ni. Nz nun jef e cef duaqmi ug fezt xovj vji txemmuxoph, xusti vjep ataem, epf vjip tji xet jewoph vsuacmi liiqoph jis nuavj dmutif. O vjopl ov emm katv huv vu jis epf tji xet aqtiv/epyouat/gsatvsevif. Tji xet giimoph e movvmi cov nusi jistimg metv povi, epf vufez O edvaemmz huv tuni tnomit, tu O'n juqoph xi esi ul gus pux. Upi ug vji pastit xju demmt sihamesmz (opt. qsuwofis pasti) fof tahhitv vjev jutqodi tjuamf nezci ci opwumwif et vjiz dep ci esuapf gus e xjomi epf puv katv ev vji wisz ipf. O tjuamf nezci muul opvu vjev. Eheop, vjeplt vu emm gus desoph. Ov jimqt ni hsievmz vu lpux vjev O dep dunnapodevi xovj uvjist xju apfistvepf. CVX tji figopovimz fuit jewi e desi fosidvowi.