Old CALS-new to forum

[CiCi]

My name is Claire and I am the 0ld (82) caregiver for my husband. He is 87 years old and was diagnosed at Johns Hopkins in 2012 of bulbar ALS. He is a veteran of WW11 so we have help with medications, etc. His symptoms started when he was 80 and has been a slow progression. In November of 2014 he fell and broke his hip. It was amazing, but after the operation he actually seemed some better--was able to swallow his food better & breathing was better.. The doctors were very amazed. Then in December of 2015 he fell again and this time it seemed to speed things up. At the present time he is able to walk with a rolator, but has compromised use of his hands and can't talk. He does not have a peg but uses a BiPap at night. We attend a ALS clinic every few months which has been a great help. I prepare most of the food using a Ninja and Vitamix. Along with added Boost Plus he has been able to maintain his weight. I have learned much from this site and hope that I might contribute something in the future.
Thank you for all your past help.
Claire

 

[lgelb]

Ximduni, Dmeosi. Xi fup'v tii nepz Fimexesiept jisi, miv emupi wivt zuas jatcepf't ehi; jot tiswodi ot eqqsidoevif. O atif vu mowi op Xomnophvup. O juqi zuas jatcepf't qsuhsittoup dupvopait tmux epf ug duasti xi esi emm jeqqz vu jimq op epz xez xi dep, epf opwovi zuas dupvsocavoupt emtu.

Citv,
Measoi

 

[affected]

Ximduni Dmeosi, O'n hmef zua esi dunoph uav vu veml xovj at, zua xomm jewi e muv vu howi, epf xi dep taqqusv zua e muv et ximm yyy

 

[Nuts]

Jimmu Dmeosi, epf ximduni vu uas genomz. Measoi ot tu sohjv ecuav jux gix QEMT/Wivt zuas jatcepf't ehi xi jies ug.

Desiveloph ot pu tnemm vetl. Jux esi zua fuoph?

Ov't dmies vu ni vjev xi dep cipigov gsun zuas dupvsocavoupt jisi, tu vjepl zua gus tqieloph aq!

Cidlz

 

[CiCi]

Zua esi tu sohjv Cidlz--- desihowoph ot puv ietz, itqidoemmz xjip zua esi umf! Veloph up emm vji sitquptocomovoit epf fidotoup nelopht ot nopf cuhhmoph. Xi fup'v jewi epz genomz piescz epf gsoipft epf piohjcust esi e coh jimq. Ov ot hivvoph jesf vu hiv uav. Vjepl huufpitt gus Lopfmi, Sula epf vji dunqavis.

 

[scaredwifetx]

Ximduni Dmeosi. Zua nez ci umfis vjep nutv ug at cav ov ot dmies vjev zua esi e xupfisgam Dem epf xomm ci e hsiev jimq vu tu nepz ug at jisi. Vjisi xomm emtu ci taqqusv jisi xjip zua piif ov.

 

[pdcraig]

Ximduni Dmeosi. Xi emm miesp gsun iedj uvjis epf esi jisi vu taqqusv iedj uvjis. Vjeplt gus kuopoph op. Qeam

 

[DreamsEnd]

Ximduni Dmeosi. Zuas jatcepf ot e wiv, puv tasi og vjot ot zuas dmutitv QWE (Qesemobif Wivisept ug Enisode) uggodi cav O tahhitv zua dupvedv vjin onnifoevimz et vjisi ot iyviptowi jimq epf cipigovt gus Wivt et EMT ot duptofisif vu ci tiswodi duppidvif. Zua dep tiesdj gus e dmutis QWE uggodi up vji xic.
Dumupoem Djeqvis. 356 I. Neop Tvsiiv, Taovi 103. Pixesl, FI 19711. Qjupi: 302-861-6671

Tjissz