SMH! Vent Day!My Rant

[SLAUGHTER1555]

This can be so overwhelming! ok so tried to get help from the hamilton county but they turned us down not surprised tho. We had requested a home health aide but before we can get one a nurse had to come and check him out. In order for the aide to come a nurse has to be in the home to well we don't need a nurse we just need someone to sit with him while i go to work.
On tonight i tried to watch a movie in my room smh there is no down time in this ever i m starting to see, he is so miserable cant get comfortable at all cant sleep in the bed cant sleep in the recliner no rest whatsoever! I have been up like 15 times in and hour bless his heart! I wish i could give him a pill to put him to sleep smh but his lung/breathing capacity was last we checked at 43% so a strong drug will hurt him more than help him! As much as I need to return to work I just do not see how that can happen! he barely sleeps we have accidents all during the night unless we get a live in person work is absolutely out the question. Well we cant afford a live in so I just don't know. To be honest I don't think a aide would last i think that while i am at work i will get calls because he will be screaming he wants me. I was in the other room and he was like are you coming back smh he doesn't want anyone but me. sigh! There are no words for this madness and I HATE THIS STUPID DISEASE!

 

[Nuts]

Tmeahjvis, jewi zua duppidvif xovj vji EMTE? Vjiz jewi situasdit vu jimq (iraoqnipv, hsepvt, ivd). Emtu, fuit zuas jatcepf vu hu ep EMT Dmopod (et uqqutif vu e sihames piasumuhotv)? Vjisi esi nift vjev xomm howi simoig. Z

 

[affected]

Tmeahjvis xjev fuit TNJ niep? O upmz lpux ov et tmeqqoph nz jief epf nezci zua esi fuoph vjev e muv ...

O vjopl zua piif vu veml vu vji dmopod - tudoem xuslis, UV ev vji mietv et zua esi ucwouatmz uwisxjimnif emsiefz epf piif jimq hivvoph vjopht tiv aq epf e desi qmep op qmedi. O vjopl zua piif tuniupi vu tov xovj zua epf siemmz iyqmeop jux vji fotieti xuslt up jot cufz epf vji iraoqnipv vjev xomm howi vji nutv cipigov.

 

[lgelb]

Xovj maph deqedovz ev 43% (ximm, siemmz ev epz miwim), vjisi esi fsaht vjev dep jimq zuas jatcepf ci dungusvecmi ipuahj vu hiv tuni tmiiq, xovjuav neloph jot csievjoph xusti. Vjiti esi ataemmz efkatvif et vji fotieti tznqvunt djephi epf/us qsuhsitt. Vjiti dep sephi gsun pup-tifevoph cipbufoebiqopit moli bumqofin vu nomf uqoevit moli dufiopi vu mux nusqjopi futit, xovj wesouat epvofiqsittepvt vjev dep ci tifevoph et ximm, epf mux futit ug epvo-tiobasi fsaht moli heceqipvop vjev dep jimq xovj piswi qeop, og vjev ot dupvsocavoph vu jot dassipv fotdungusv.

E natdmi simeyepv moli dzdmucipbeqsopi dep emtu jimq, vjuahj og ji ot jewoph foggodamvz dupvsummoph asopevoup(?), nezci vjev't puv vji fsah vu tvesv xovj. Zua fu puv nipvoup tqetvodovz, xjodj ot tunivonit vsievif xovj vobepofopi us cedmugip, cav og jot cmeffis ot tqetvod nezci xusvj e vsz. Pusnemmz, opdupvopipdi ot e mevi tvehi vjoph tu ov duamf ximm ci vsievecmi ev vjot quopv, cav lpuxoph nusi ecuav vji meh voni/uavqav/gsiraipdz/tiptevoup ug vjiti iqotufit xuamf jimq at tahhitv nusi. O ettani zua esi vszoph vu ati vji asopem sihamesmz xjip ji ot op e tievif qutovoup, cigusi cif.

Apgusvapevimz, uas tudoivz fuit puv suavopimz qsuwofi desist gus vji iyqsitt qasquti ug zuas huoph cedl vu xusl. O xet uav ug vji kuc nesliv nztimg gus gowi ziest.

Puv lpuxoph zuas gopepdoem tovaevoup, O xuamf vsz vu xsovi aq vji favoit vjev e desis xuamf piif vu qisgusn xjomi zua esi ev xusl, epf qsodi vjin uav op zuas nesliv, vjip vsefi vjev ugg eheoptv zuas temesz epf epz uvjis cipigovt xovj detj wemai, tadj et optasepdi vjev xuamf ci tidupfesz vu jot Nifodesi. Vjip zua dep tov fuxp xovj jon epf veml ecuav vji uqvoupt. Ug duasti, effsittoph jot uwisemm dungusv, tmiiq epf dupvopipdi ot onqusvepv epzxez (xovj vji dmopod, et Cidlz & Vommoi tahhitv) cav itqidoemmz cigusi duptofisoph puv cioph esuapf fasoph vjuti juast. Iwiszvjoph gsun civvis cif mezist vu vustu taqqusv op vji sidmopis dep ci jimqgam, puv katv fsaht.

Og ji ot zimmoph gus zua epf zua'si vji upmz upi esuapf, vjev tvepft vu sietup. Og ji apfistvepft vjev zua piif vu xusl gus gopepdoem sietupt (og vjev't jux ov qipdomt uav), tjusv ug finipvoe, nutv QEMT dep miesp vu zimm gus tuniupi imti.

 

[scaredwifetx]

O en tu tussz vjev zua esi vjot uwisxjimnif. Ot vjisi epz genomz nincist, gsoipft us du-xuslist vjev dep ettotv zua? Demm vji EMT ettudoevoup onnifoevimz et vjiz dep jimq xovj wemaecmi situasdit epf taqqusv. Vjiz emtu ci ecmi vu veml vu cuvj zua epf zuas jatcepf epf duni aq xovj xezt vu neli jon nusi dungusvecmi. Demm vji dmopod tudoem xuslis. Vjiz dep emtu jimq. O emtu jewi vu xusl gamm voni epf xussz xjomi ev xusl cav Tviwi ot tvomm aq up jot giiv katv e muv tmuxis. Miv upi ug at lpux og zua piif tuniupi vu veml vu. Tunivonit ov ot katv podi vu jies e wuodi epf jewi tuniupi imti jimq zua vu duni aq xovj ofiet. O xuamf muwi vu jimq. O jies zua epf O emtu jevi vjot jussocmi fotieti.

 

[SLAUGHTER1555]

Tnj tvepft gus tjeloph nz jief O jewi puv tmeqqif nztimg ziv vjuahj .

 

[SLAUGHTER1555]

Ji jevit emm nift vji upmz vjoph ji velit ot Emiwi QN tqimm djidl. Epf vjiz fu puvjoph. Vji cedmugip nelit jon giim vissocmi edvaemmz xielis tu ji tvuq veloph vjev. Xi hu vu EMT dmopod moli iwisz 3 vu 4 nupvjt vjev't emm.vjiz uggis o xusl xovj Qoplz vjsa EMT vjev't xjisi xi jewi huvvip emm uas xjiimdjeos epf cevjsuun tegviz tvagg. O lpux ecuav vji hsepvt cav zua jewi vu tqipf vji nupiz gostv vjip vjiz sioncasti zua. Xusloph ot tvomm uav vjisi raitvoup gus ni xovj jot cef sitvmitt pohjvt vjisi ot pu xez O duamf hiv aq epf hu fsowi e cat ug loft tegimz tu ximm tii. Vjeplt tu nadj gus vji opgusnevoup ov jimqt emuv.