ttran
New member
- Joined
- Jul 12, 2024
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 01/2024
- Country
- US
- State
- VA
Hi all! I'm Gia -- new here!
My dad was recently diagnosed with ALS earlier this year. So far, he's having difficulty with both arms mobility and a bit of swallowing difficulty at this moment (we will be doing a feeding tube sometime in the fall).
We planned a trip to take him back to his homeland (Vietnam) next month to visit (it'll probably be his last major trip out of the country). I was wondering if anyone has had experiences traveling with ALS or with ALS family member to a country that's really hot and humid. I talked to our doctor/neurologist and they said while heat could make one tired, it shouldn't be something that stops us from traveling. They said the key major thing is making sure we're not over exhausting him on major long walks/going out for too long/etc. I'm also taking precaution in terms of making sure there rest days, have a room/hotel with A/C, making sure my dad stays hydrated, safe transportation, submitting medical assistance forms to the airlines, etc.
A part of me is worried that traveling with extreme heat would impact his breathing capacity in the long run or weakened him further with this disease.
My dad was recently diagnosed with ALS earlier this year. So far, he's having difficulty with both arms mobility and a bit of swallowing difficulty at this moment (we will be doing a feeding tube sometime in the fall).
We planned a trip to take him back to his homeland (Vietnam) next month to visit (it'll probably be his last major trip out of the country). I was wondering if anyone has had experiences traveling with ALS or with ALS family member to a country that's really hot and humid. I talked to our doctor/neurologist and they said while heat could make one tired, it shouldn't be something that stops us from traveling. They said the key major thing is making sure we're not over exhausting him on major long walks/going out for too long/etc. I'm also taking precaution in terms of making sure there rest days, have a room/hotel with A/C, making sure my dad stays hydrated, safe transportation, submitting medical assistance forms to the airlines, etc.
A part of me is worried that traveling with extreme heat would impact his breathing capacity in the long run or weakened him further with this disease.