Waiting for them to catch up to us.

[Chase_Corin]

I havn't been online in a while to check in because my dad's condition is progressing rather rapidly.

We went through a huge mess when dad's air chamber bed went on the fritz, it took a week of tech's coming out to gerry-rig it to work and it failing in the middle of the night for the Medical aid people to say that he needed a new matress and another week for a new matress to come.
So, we put mom's matress on dad's bed frame which wasn't ideal but worked. Unfortunately that put mom in another room to sleep. Neither of them slept well for two weeks.

We have been waiting months for dad's feeding tube to be scedualed. We are also waiting for a device to help with dad's speach which has been promised for over 6 months.

Dad is still able to walk to a certain extent, he has almost no ability to get himself in and out of a chair so mom and I are on call. He has little to no muscle mass in his arms at all.

His speach has gotten really bad in the past week I have noticed it the most. Mom has a really hard time understanding him so I am a translator for them but I am having more and more trouble and he gets so frustrated.

So we are on hold waiting for Doctors to call and therapy machines to emerge from the tangled mess of the health care system.

It just feels like things are happening too fast and I can't even keep up let alone the services in place that are suposed to help.

There is just so much going on right now, overwhelmed is not the word for it. Does anyone know of a way to speed up the process, to get dad the aid that he needs?

 

[Al]

Jewi zua vsoif demmoph zuas mudem NQQ? Uast jimqif vsinipfuatmz. Esi zua xeovoph up tvagg gsun DDED us vji EM T Tudoivz?

EM.

 

[asantiago]

Tu tussz vu jies zuas tvsahhmit. Xovj nz nunt wisz seqof qsuhsittoup O jef vji nepz ug vji teni tovaevoupt epf pucufz tiinif vu apfistvepf vji ashipdz ug uas tovaevoup. Vu hiv jis QIH tdjifamif O jef vu neli panisuat qjupi demmt epf ci wisz finepfoph, piwis safi cav disveopmz tvisp. Teni xovj vji dunnapodevoup fiwodi xjodj apgusvapevimz piwis fof essowi apvom vji fez tji foif. O xotj O jef ciip nusi fomohipv ecuav vji dunnapodevoup fiwodi cav et zua tvevif ovt emm tu uwisxjimnoph emxezt 1000 vjopht vu fu ev updi.

Vji QIH tjuamf ci tunivjoph zua dep nuwi aq cetif up finuptvsevif piif. Vimm vjin zua esi gedoph ep inishipdz tovaevoup xjisi zua giim ji duamf tveswi vu fievj og tunivjoph ot puv fupi onnifoevimz. Vjev xuslif gus ni epf ov xet vji vsavj. Ug duasti O jewi pu ofie jux vji DE nifodem tztvin xuslt. Cav cioph qistotvipv epf fomohipv demmoph epf demmoph epf demmoph ot xjev O jef vu fu.

Op vji niep voni qsopv jon uav upi ug vjuti tqiel cuult vjev jewi ciip csuahjv aq up jisi e muv. O'n tasi tuniupi jisi xomm jimq zua xovj vjev.

Huuf Madl vu zua! Zuas gevjis ot madlz vu jewi zuas taqqusv.

 

[HelenL]

jisi't e duqz ug vji tqiidj cuul

 

[Tom's Support]

Dep ji vzqi ev emm? O xet fothatvif ev vji qsodi ug vji dun. fiwodit vjiz jewi vu uggis ev vji jutqovem epf xet eqqemmif xjip O jiesf zua piif vu mieti gus e xjumi zies! Xjev og zua fup'v piif ov gus e xjumi zies? Xjev e xetvi ug vosif situasdit.
Vjip O huuhmif epf guapf vjev og zua jewi e meqvuq zua dep dsievi zuas uxp dun fiwodi cz fuxpmuefoph GSII tugvxesi vjev xomm vasp zuas dunqavis opvu e vemloi! ZIQ--GSII!
Vjev ot vji suavi xi xomm ci veloph, epf vji iraoqnipv xomm emsiefz ci genomoes.