Latest activity

It is exceedingly unlikely that ALS would show up as a stiff thumb, especially with the carousel of concerns you describe. Your...

I would get comfy w/ the AirCurve, which was designed as your home machine anyway, before jumping into the Breas. Kind of like veering...

Swallowing comfortably relies on being hydrated and getting enough refreshing sleep. Wearables and smart scales can weigh in (pun...

OSCAR is fine. It's a successor to Sleepyhead, if anyone used or is using the latter. Sleepyhead is no longer being developed. That...

None of what you describe sounds like ALS. There are many things that it could be and anxiety is one. Post-viral symptoms is another...

Sonia,does your father attend clinic? My neurologist sent me to another neurologist that specializes in giving the Botox injections. I...

For anyone reading, note that the target Va is height/weight-dependent, so anyone else, please ask me before setting it. Also, Va, used...

Again, if no one else hears speech changes, they're not real. If you want proof, say the same sentence every week into your phone and...

I'm completely paralyzed except some very slight head movement . I have had a trach since fall of 21. Feeding tube only. 100% vent...

My left ankle was first. My right leg is still strong although I use a wheelchair outside the condo. I can still drive and walk very...

100% , reread the first sentence of Nikki's last post. Since you have a mild peripheral neuropathy, it may be worth asking your PCP or...

Do people with limb onset go on to develop bulbar symptoms? Yes Usually as limb weakness doesn’t kill us so we either die of...

I get interstitial pain - the muscles between your ribs. It's actually my longest onset symptom pre-dating dropped foot. I think it's...

I don't think a few days is enough time to even think of "moving on" and wouldn't put that pressure on yourself, Mary. Some days there...

Yes, I will PM you, TB.