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Hello,
I wondered how you were getting on with the different supplements you are trying, and whether you have looked into the deanna protocol? I have a working diagnosis of PLS after 2.5 years of trying to figure out the increasing spasticity etc. I have begun taking coconut oil, turmeric, vitamin D3, coenzyme Q10 and I have bought N Acetylcysteine, which I saw that you did a post on, but not tried it yet.
Anyway, hope you are doing ok. Sorry to bother you - feel free to ignore!
PeteShiftKicker, it's me again, Mike. Can you please email your answers to me at valleystaky at yahoo.com ...thanksHello...of late, has there been a reduction with your spasticity while using cannabis? I've been reading that there are many strains. Have you tried the cannabidiol form, or are you just smoking the MM? If you are using the cannabidiol extract, can you share your experiences with strain choices, choosing sellers and purchase process? ...thanks, MikeShiftKicker,
I have been following the mmj discussion on scotia's thread. Do you have a dispensary membership, buy online or use other sources? Have you bothered with a license? I tried an edible a few months ago, but the THC was way to much and not a pleasant experience. I would like to get something where THC/CBD content is better controlled. Any suggestions?
Hi Fiona,
I've been reading your posts re: nighttime sleep/coughing and problems with meds. I remember that you were ingesting raw cannabis previously--don't know if you still do this. I find that vaporizing it is very helpful at night for sleep and loosening me up for a few hours (more than ingesting it). It has anti inflammatory properties that might work directly on your airways. It is a more direct and immediate effect than ingesting the raw product, but of course you'd have to invest in a decent vaporizer and they aren't cheap. Mine was around $200.
I always feel weird posting about mmj on the main site so I thought I'd try this way.
Hang in there! Kathy
P.S. I found your post to me too late and now I see your email is removed.
Hiya, Paul- so very sad to meet you here. The Lyme connection is an interesting one. I was tested for absolutely everything when I first got into this- including some pretty exotic stuff. I have never been exposed to ticks, so Lyme/borreleosis was an extreme outside chance. It would have been wonderful to get a positive back for that, given the alternative.
Stay safe- I hear you kids are getting hammered by winter over on your side. Though I miss snow, I am also enjoying looking at the daffodils about to bloom in my garden!
Take care-
Fiona
Hello Shiftkicker
I am in Nova Scotia, the other end of our vast country and was dx with Limb Onset ALS in November, although my family doctor felt I had ALS months earlier, but had to go through the neurological testing and exams to confirm. In just six months, I went from being able to walk several km in the woods without resting to where now I have to use a walker. Little things are getting heavier with each passing day.
I really believe there is a link between Lyme Disease and ALS. There are several others in our local ALS support group that feel the same here too. It certainly is a tough disease to live through both physically and emotionally. Just wanted to say hello to a fellow canuck here on the forum. Scotiaspirit (Paul)
Hi SK,
I thought it would be better to post this just to you. Would you mind sharing you dosage per day of mmj? Although I know it's hard to be precise.
My mmj use is totally on my own, so it's an imprecise process of figuring out how much and how often, especially not knowing the thc/cbd content (but I know it's safely grown). I use a vaporizer and take around 4-6 draws at night using an indica strain. Not sure if I could do this in the daytime though, I'm afraid I'd sleep all day! I have some homemade oil but don't use it as much, but may be I should.
What does the Lamotrigine do for you? I haven't heard of that drug yet.
Thanks, Kathy -
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