Hi everyone, having a hard time sleeping..... anxiety, nervousness... I think i need to up my prescription. I saw my doc in November for my follow up, now i go back to have ANOTHER emg and physical therapy session on the fifth. Then ofcourse there will be another follow up visit. The doctor...
i need help. cant take it anymore. why me. what have i done to deserve this. ALS, divorce, my sons anger, loosing my caretaker. i just cant handle it. my son who is taking care of me woke up sick and i hate not being able to help him. i just want to die.
Hi
My name is Andy MacKinnon, I am 19 years old and I am a sophomore at Miami University. My father, Keith, was diagnosed with Bulbar Onset ALS June 6, 2009. He is my best friend in the entire world and I cannot imagine one without him in it. He started off with slurred speech, sounding like he...
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I have been told soooo many times in my life, "You are so strong" and it never felt like a compliment. Did I feel strong?! No, not at all. I found this website and now I know the word and it fits and it FEELS GOOD. I AM RESILIENT ! Yes-that is ME! :grin: I want to share this with all of...
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This is off-topic in the sense that it has little to do with my ALS, but nevertheless is very painful and I want to share it. My family has always been very supportive and that has played a big part in my attitude toward this disease. Many of you have shared my joy at some of my vacations...
Hi-- here once again to ask a question. I do not have a diagnosis of anything yet, but have an 8 or 9 month or so history of muscle twitching, weakness, pain, etc. negative EMG on three limbs in June. one neuro says ALS unlikely; the other said in July, no ALS at this time. both say maybe some...
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The following is a poem that I have written to express my experience with having a loved one with ALS. I hope that this helps those in the same situation stop and think about things with a different perspective.
Dear God, Why?!?
Why do loved ones get bad news?
I’m so sorry there is nothing...
The following is a poem that I have written to express my experience with having a loved one with ALS. I hope that this helps those in the same situation stop and think about things with a different perspective.
Dear God, Why?!?
Why do loved ones get bad news?
I’m so sorry, there is...
Hello,
I am new to here. I've been told that I possibly have ALS. It isn't official yet - but the neuro said it's definitely a possibility. I started showing signs about 16 months ago. I'm seeing a specialist soon - in about 2 months.
Anyway... I did my ALSFRS with her, I've scored a 42 out...
I'm not a primary caregiver, heck I'm just a daughter who lives 6+ hours from the situation and I'm hearing all kinds of stuff going on.
The bottom line - my Dad is having a terrible go of it. His diagnosis is only a few weeks old, even though he's been living with the symptoms for a year now...