anger

  1. C

    back and thinking clearly

    Hello, my last post was fueled with post diagnosis anger I guess if you could call it that. I had just been diagnosed with bulbar and respritory involvment by dr Mazziota of UCLA I've since booked my second opinion at the ALS clinic at Sedar Sinai (if that's how you spell it) because still to...
    • CaptainPlanet
    • Thread
    • als anger anxiety back brain breathing breathing issues bulbar clinic denial diagnosed diagnosis diaphragm diaphram emg foot foot drop free life muscles onset second opinion speech symptoms twitch twitching weakness work
    • Replies: 11
    • Forum: Could this be ALS?
  2. C

    Predictive testing

    My husband has a history of mnd in his family. His mother, auntie and brother having all had this horrible disease and sadly passed away. I think his grandmother also had this disease. They have identified the gene alteration that is causing this in his family using his brothers DNA; its FUS. I...
    • CutieHootie
    • Thread
    • anger back brother crying family family history life mnd scared test testing worry wrong
    • Replies: 7
    • Forum: Familial ALS (FALS)
  3. R

    Waving a sad hello

    It is only in the past 4 weeks that life has changed so incredibly much.... before it was me struggling to manage the care of my household, husband, 6 & 2 year old children, managing my career (I am a scientist) and managing care of my brother (6 years into ALS diagnosis) while also managing the...
    • Rasl30
    • Thread
    • ability age als anger angry awareness biopsy children dementia diagnosis driving emg familial family family history fasciculations ftd health hours kids meds money muscle neurologist progression reading sad stroke symptoms thumb walker worries wrong
    • Replies: 12
    • Forum: ALS and frontotemporal dementia
  4. U

    A story about falling ill in ALS, the devil´s disease, with reflections and criticism

    A story about falling ill in ALS, the devil´s disease, with reflections and criticism you can have as a physician after onset of ALS. Author Ulf Ljungblad MD, PhD - August 2014 ALS is sometimes called the devil´s disease. It usually affects fully healthy often physically very active persons...
    • ulflju
    • Thread
    • acne als anger angry atrophy bulbar candida christmas cmt cold cramping crying cure cured diagnosis exercise falling fatigue fell free genetic hiv hours ideas idiot improvement information keyboard lead lift medical medicine muscles neurology oxygen problems research riluzol risk shower chair speech student symptoms teenager therapy umn wheelchair work
    • Replies: 5
    • Forum: Research and trials
  5. S

    New Member / Awaiting Diagnosis / MIP Questions

    Let me begin by saying how much I respect and empathize with this horrible battle that each of you are going through. None of you deserves it, and I know there is little I can say that will help, but my heart is with each of you, for whatever it is worth. I have not been diagnosed, but it is...
    • ScottW
    • Thread
    • als anger angry anxiety bipap bulbar confused diagnosis emg frustrated fvc idiot information insomnia lung capacity medical mistake muscles neurologist neuromuscular disorder new member normal emg oxygen problem reading research sad support symptoms tests wanted weakness work wrong
    • Replies: 25
    • Forum: Could this be ALS?
  6. adozi

    Staying Mentally Strong After an ALS Diagnosis

    I think this warrants its own post. Hope it helps people! "Dealing with any chronic or terminal illness is challenging for anyone. It's OK to not be OK with it," said Kraunelis. "The hand that’s dealt to us isn’t always fair. But how we play that hand is within our control. We can choose to...
    • adozi
    • Thread
    • ability age als anger balance coping dad denial depression diagnosis driving early family healing heart helpful hope ignore improvement information life love mental health natural person with als problem questions stages support treatment
    • Replies: 13
    • Forum: General discussion about ALS/MND
  7. C

    Recently diagnosed

    Hi: I was accepted in January, 2014, to the Undiagnosed Diseases Program at the National Institute of Health where I got a diagnosis. PLS. This was after 5 years of extensive testing on the outside. My greatest difficulty is walking. I fall less now because I use a rollator. I broke my...
    • Chris3274
    • Thread
    • anger bed diagnose diagnosed diagnosis family health night pls power running sale support testing undiagnosed young
    • Replies: 8
    • Forum: Primary lateral sclerosis
  8. F

    Second Tragedy- (WARNING- tragic)

    How do you deal with the unthinkable when you're already battling ALS as a family? My Chaddy-Baby (my cousin I loved dearly and not that Chad was a baby- he was the older one- 20 going on 21) was recently killed in a murder/suicide. I don't I've really come to terms yet with the fact he's gone...
  9. H

    New to forum

    Hello, My name is Guy. I am 59 years old, English and live in Amsterdam, Netherlands with my 55 year-old husband. We have been married for only three years and I never dreamed I would ever be so lucky as to meet such an incredibly intelligent, intuitive and wise man, let alone live in a society...
    • Henchard
    • Thread
    • als anger balance chair diagnosed fear guilt love night respite speech tests transfer work
    • Replies: 2
    • Forum: Current caregivers
  10. affected

    Now I'm sure

    Sadly I have come to the conclusion that my PALS does have FTD. No I haven't had it diagnosed by a doc tor But I have had many discussions with other health professionals in our care team, some small things that they have now witnessed and with my ALS coordinator. All agree that his behaviour...
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