Hi everyone, I am fighting als. I seem to have the bulbuar type. My breathing is down to 1/3 and my hands and arms are very weak. I lost a lot of weight and now I have a food tube. I still can eat soft food and thick drinks. Questions:
1. Does anyone know of a sleep aid that is effective and...
Hello,
I am seeking guidance from anyone who has tried Botox injections of the Salivary Glands to decrease secretions associated with PBP. My mom is 71 and is three years into this disease. She has a feeding tube and is not allowed to take anything orally. She has tried numerous medications and...
I'm not trying give anyone false hope here, only posting what i find to be real, geniune stroies, i've spoken to two of these personnaly. Pay close attention to who wrote the thread, you will see a chain of progress from a few people.
For those of us, who are in unknown land (Normal EMG, NO...
Hi Everyone,
I am new to this- but as my husband's sole caregiver, I have been reading your posts and have found valuable suggestions and help. My husband, Marv, was diagnosed in Sept. of 2005. He started with slurred speech, then difficulty in swallowing and eventually had to have a peg...
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Thanks for all the replies from everyone concerning Botox. Grampal, as you suggested I immediately contacted mom's doctor and inquire of the benefits of this experimental treatment. He told me it would deaden the nerves of her arms and right hand to release the muscle contractions, spasm and...
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Dear friends,
My mother is in the advanced stages of bulbar ALS and they are taking her Monday for Botox injections for her arms. Has anyone heard of this before as a treatment? She is going to an ALS clinic in Nevada. They said it could help to give her more mobility of which she has none...