My son graduated from HS on the 6 th. We were able to get Kathy to the ceremony and it was reLly a wonderful day. Her hair stylist came and did a blow out, so she refused to wear a hat! LOL. We ordered a cab to transport her in the chair and it was a breeze. My ex husband and my boyfriend met...
Hi, my boyfriend of only two months was recently diagnosed. We have been getting very close and I feel that he is a man I could spend the rest of my life with. He has suggested that perhaps we should stop seeing each other as it wouldn't be fair for me to be tied down to someone with ALS. Can...
My mother was diagnosed September 2012 and passed December 1 2014 at 11 pm. Although her official time of death is midnight, December 2... Which was my 25th birthday. She was 53 years young. This is the first support forum I had visited. I then found an ALS caregivers page on Facebook which was...
Hello. My boyfriend has "probable ALS." (Per an ALS specialist.) He has both UMN and LMN signs, bad EMG, etc. He also has cold-induced hand weakness. I believe this is called "cold paresis." His hands weaken to the point that he can't turn a key when they are cold. Then, he regains strength when...
Since January my boyfriend has been struggling with some symptoms that appear to be ALS in some regards but in other ways we think it certainly is not. He had an EMG in August which clearly states no sign of motor neuron disease. We were relieved. We have had multiple referrals which led us to...
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:) This is a picture of my husband being carried upstairs at our house be my daughter's boyfriend and my oldest son. He had not been upstairs since 2009 when he got his PWC and stopped walking. I had the upstairs bathroom remodeled since the kids moved out and he wanted to see, so they boys...
I am terrified. My boyfriend has had fasciculations all over his body for two years. He went to a neurologist recently, who said he tested weak in his hand. He went back for EMG and NCS. At that point, the neurologist said that fibrillations were detected, and Motor Neuron Disease was “highly...
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Good Evening,
I've been experiencing a wide range of symptoms over the last month or so that may or may not be related to ALS Bulbar onset. I'm a 24 year old Female here in NY.
1: Twitches in the face and legs. These sort of came on out of nowhere, or at least it's that I never noticed them...
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When I wrote my very first post about my 55 yo friend’s AFO situation a few months ago, in addition to getting information, I received some very nice “gentle reminders” that basically said to butt out—I was reminded that how the situation was handled was up to my friend and her boyfriend. But I...
I am a close longtime friend of a PALS who was diagnosed last year. I know she and her boyfriend do not want advice from well-meaning but clueless friends. I do understand and am trying not to say too much. I know she is seeing someone a few times a year who is supposedly a specialist at an ALS...
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