hearing

  1. R

    suggestions welcome

    Hi- This is my first post, I have been reading for a while and am hoping I can get some suggestions. My husband Rick was diagnosed with als in august of 2006 and we have been dealing with it one day at a time, trying to maintain a positive attitude and keep life as "normal" as possible for our...
    • roxie
    • Thread
    • age als children diagnosed eyes family family member food hearing home care hospice hours life medicare reading suction trach work
    • Replies: 4
    • Forum: Current caregivers
  2. C

    Caring for Daughter

    So glad to finally have found this caregivers forum, so I can have a place to vent. Nobody else would ever understand. My daughter was diagnosed 11 years ago, when her daughters were ages 1 and 5. Doctors said she had 3 months to 5 years to live. I was envisioning those poor little girls...
    • comfortermom
    • Thread
    • als back caregivers caregiving daughter with als diagnosed eyes finger food hearing speech vent wheelchair
    • Replies: 11
    • Forum: Current caregivers
  3. T

    ALS symptoms - ticking the boxes

    Hi guys, Over the past 3 weeks Ive been feeling really light headed and if I over exert myself I really feel ill and have to lie down. Now about 4 months ago I developed a problem with my right knee - went to see a Physio with no real result so I gave up and rested it. Im an active athlete...
    • tomjstones
    • Thread
    • als als symptoms als? arm back exercise eye eyes go away hearing hip holiday hours mri muscle night pain problem problems shoulder sleep symptoms tongue twitching weakness work
    • Replies: 2
    • Forum: Could this be ALS?
  4. J

    question about fasics-benign or other

    So first, I believe I am losing my mind. For days I have been saying that my fasics are in my right leg calf. It was my front right thigh! :roll: So today around noonish (just after the full body bone scan) the fasics in my thigh slowed down and while they weren't as visible I could still feel...
  5. E

    Treatment

    Hi all My brother is diagnosed with ALS. The doctor have informed us that there is no treatment at all besides "Rilotex". I've been hearing alot about stem cell treatment and i'm looking for any info concerning this matter. Do u know of any Doctors/Hospitals offering this treatment? Any...
  6. S

    Myozyme

    Hi everybody, I was watching our local news tonight and there was a story about Pompe disease which is a type of neurological disease, they started to use a drug called Myozyme which has just gotten FDA approval. The drug company has also mentioned they are going to do trials with this drug...
  7. D

    Panic time

    HEllo everyone, My dad called me yesterday morning, saying we need to write his obituary, look at his will, that he won't be able to stay in his assisted living place more than another day or two. Apparently, during the night, he couldn't talk at all, and he can't stand by himself. He just...
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