Hello Everyone, haven't posted in about a year, but just wanted you all to know that my husband passed away today. He fought a brave fight but the illness finally took over. He was diagnosed mid 2005. Progression was slow in the beginning but sped up after diagnosis. Symptoms started in 2002. He...
Just wanted to let you know that my husband, Ralph, who had bulbar ALS and was diagnosed Sept 14, 2006 passed away on Aug 19th. He is enjoying his heavenly homecoming but we will miss him here. I have not posted that much but come and read other people's posts and they have always been so...
Hi all--
I have been away from the site--my husband Shannon died on July 28th, 2007, here at home with me and hospice nurses, as he wanted it. I had the chance to post this news on a couple other sites but am just getting back here. I dont know what I would have done without these online...
Hi everyone. I have emailed some of you. Learning how to navigate a forum. Never done this before. Any insight of what test to have done for accurate diagnosed would be appreciated. I feel at the mercy of all md's. This waiting game is brutal. Thank God for the sun today. We really need the...
I am new to this site. I was looking for a support system for my husband and myself. My husband was diagnosed this past September with ALS, after 2 years of mis- diagnosis'. The whole disease is frustrating and such little known about what to expect with progression. It is my hope he will...
Hi :-D I found this forum searching for articles on PMA (I didn't find too many).
My husband is 31 years old, we will be married 10 years this year and have a seven year old daughter. In August/September 2006, he started noticing loss of strength in his right thumb and a "mushy feeling" in the...
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Hello. My friend and her husband found out about his diagnosis (bulbar onset ALS) last August. Six months later, my dear friend is not doing very well as far as coping with this tragedy. She takes care of her husband very well - tending to his needs. But she is still so devastated...
Hello. My mother n law who is 62 was diagnosed with ALS in August of 2006. My husband who is 36 moved in with her in early November. He is still able to work full time because of the help of hospice and his aunt who stays with his mother during the day through the week. I also work full time...
Hello,
This is my first post and I'm in search of guidance due to frustration and concern for my husband. We live in Southeast Florida. My husband is 40 years old and this began 6 months ago. His left hand has total muscle loss and now we see signs in his right hand. He is beginning to have...
Hi,
My husband was diagnosed last Thursday with ALS. His is mostly in the bulbar area and has already affected his breathing. The put him on a Bipap machine, suction machine and trying to get the ok from ins for a coughalator. We went to the Gastro dr today to see about a feeding tube which they...