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  1. M

    Concerned

    I want to preface this post by saying I have already sceduled an appointment with my doctor in two weeks. I would also like to say that it's incredible and inspiring to read the stories of those afflicted with the disease, and to see that some who are fighting it would lend their time to answer...
  2. E

    Thanks for the answers..

    Hey guys , my english bad so please ignore it as possible. (Age:25 Sex :Male) There are weird things happening to my body since around mid of this august.Atleast i realize them(dont know). {First there was a uncontrollable(not small movement,i cant make that with same frequency) movement on...
  3. A

    Three years and still going!

    I tried to add this as a blog, but thought I would put it here as well. Three Years Today I celebrate the three-year anniversary of the worst day of my life. I was so scared that day, looking ahead to life in a wheelchair, giving up all independence, and being such a tremendous burden to my...
  4. T

    Terrified about my progessing symptoms- muscle loss, spasms, tingling

    I have been pretty much paralyzed from fear ever since these symptoms started showing up and I could really use an opinion. I know this is very long and rambling, you will roll your eyes since my symptoms appear due to injury, not disease, but please hear me out. I cannot get the thought of...
  5. L

    What are the chances?

    Hello everyone. Firstly my thoughts go out to all of you PALS and CALS. If I am not gone by then, my passion is neuroscience and I hope to become a medical researcher in the study of progressive neurological disorders such as ALS and Parkinson 's. I am a 17 year old African American female. I...
  6. M

    Today is the day.

    After 2 years of symptoms I am about to go see a neurologist in 2 hours. Things have changed since my last post. I have muscle wasting in between most of my fingers on my left hand especially in-between my thumb and index finger. The weakness that was once just in my hand has went into my arm...
  7. R

    Pre-symposium "Ask the 'Experts'"

    Here's the link... http://www.alsmndalliance.org/wp-content/uploads/2016/10/ATE-Flyer.pdf Livestream will be available. It looks like they will accept questions in advance via twitter, so please tweet them away to @alsmndalliance . And if anyone is not on twitter and wants to submit questions...
  8. D

    Help I'm scared

    Hi I was a typical 56 year old female healthy just retired in April and enjoying life golfing 4-5 times s week At end of July I just had this feeling of malaise come over me. I never felt like that before. I noticed I had been really stuffed up for a couple months because of the record rain we...
  9. A

    Finger Twitches?

    I apologize for coming in here and asking questions for a second time, but the BFS site is no longer adding members and I have another question. I tried to find a thread where someone asked about finger twitching specifically and could not come up with anything. I was on about a month ago...
  10. Nikki J

    Edit options

    This is under user cp ( that button is on the far left of the blue bar. ) Just a reminder that if you wish you can turn off visitor messages and also there is a choice to limit your pms to contacts and mods. You are of course free simply to ignore unwanted messages. I think, though I am not...
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