locked in

  1. swalker

    Things I have learned about EZLock

    We all need some way to secure our wheelchairs in our wheelchair conveyance (minivan, full sized van, etc.). For most of us, that seems to boil down to either a system that straps the wheelchair in (such as QStraint) or one that automatically locks the wheelchair in place (such as the EZlock)...
    • swalker
    • Thread
    • adjustable battery cost fingers lift locked in minivan mobility problem secure stupid wheelchair van wheelchairs
    • Replies: 4
    • Forum: Tips, tricks, and gadgets
  2. D

    Thankful for advance directive

    [I'm posting this again without my original closing sentence that someone thought was religious. I'm not religious, and nothing religious was expressed in my post or in any replies before the post was removed. But I guess there's no use quibbling with a censorious site moderator who thinks I...
    • Dawood
    • Thread
    • als back brain christian christmas death depressed diagnosed eyes family family member feeding feeding tube hours life locked in morphine night paralyzed questions stroke tobii treatment ventilator wanted wheelchair wrong
    • Replies: 2
    • Forum: General discussion about ALS/MND
  3. D

    You never know in life

    From the first mention of ALS, I believed my wife would not want to live locked in, and it came as no surprise that when she prepared her advance directive, she wrote that she did not want anything done or omitted by her doctors or nurses with the intention of taking her life, but that she...
    • Dawood
    • Thread
    • als brain christmas death depressed diagnosed eyes feeding feeding tube hours life locked in morphine night nurses paralyzed questions stroke therapy tobii treatment ventilator wanted wheelchair wrong
    • Replies: 17
    • Forum: Religion
  4. M

    Question about dogs!

    I have a service dog. I just bought a conversion van so I can ride my wheelchair up and into the van where it is locked into the passenger seat space. I then transfer over to the drivers chair. My dog used to ride in the passenger seat but does not now want to sit in the wheelchair. So looking...
  5. 4tloml

    Low Nighttime O2 Sats

    We've been checking my husband's O2 during the day but hadn't at night. He has complex sleep apnea and REM Behavior Disorder (RBD) and has been on melatonin and a "Respironics BiPAP autoSV Advanced" for around 2 years at night. He's been on the Trilogy on and off throughout the day since...
    • 4tloml
    • Thread
    • als bipap clinic info locked in night oxygen pressure questions rem behavior disorder risk running sleep travel trilogy
    • Replies: 18
    • Forum: General discussion about ALS/MND
  6. Mike in Maine

    What is your opinion PLS or ALS?

    Let’s begin by saying I could have easily put this under the “PLS/ALS Association” thread but after much thought decided to start a new thread. As a matter of fact looking back in the pages of the PLS forum there are many threads that debate the PLS/ALS relationship question. So this is just...
    • Mike in Maine
    • Thread
    • als als? back clonus data dihals dirty emg emg falling fatigue foot foot drop hours hyperreflexia locked in mnd muscle muscle fatigue muscle wasting muscle weakness neurologist pls second opinion shortness of breath sleep story swallowing symptoms umn voice weakness
    • Replies: 36
    • Forum: Primary lateral sclerosis
  7. MaxEidswick

    Would you vent

    There has been a lot of chatter about quality vs. quantity, getting locked in, CALS experiences with the end time, etc.
  8. N

    Vent question

    Does everyone who gets vented eventually progress to the locked in state-no movement even in their eyes?
  9. Nuts

    Lousy Options

    It's been five months since my husband's diagnosis, and I thought I'd come to grips with it. Right. I barely made it out of the hospital in one piece today and I'm terrified that I'm going to break down in public and just not be able to stop crying. We knew my sweetie has a vertebrate that...
    • Nuts
    • Thread
    • als candida chair crying diagnosis feeding feeding tube fell locked in pain pressure progression reading slow progression surgery ventilator work
    • Replies: 10
    • Forum: Current caregivers
  10. P

    Ques about UMN and stiffness/spasms

    I have a very basic question. I understand that stiffness, spasms, spascity all to be a part of UMN. So if you are having spasms and you tell the dr this, how come he/she indicates a clean exam? (i.e, no UMN symptoms). Does the dr. have to SEE it? More specifically, in my case, my...
    • Pyrs
    • Thread
    • burning locked in muscle pain spasms stiffness symptoms test umn
    • Replies: 3
    • Forum: Could this be ALS?
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