lonely

  1. S

    Behavioral changes

    My wife was diagnosed two years ago, and the progression has been quite fast. Right now she is almost completely immobile, has a PEG and a vent since a little more than a year. She used to be really smart, both in the academic and the emotional sense, had a great sense of humor, and used to be...
  2. B

    Husband diagnosed with ALS. Scared lonely and don't know what to do next

    My husband was diagnosed with ALS last August. I had two people to support me but one died in April and one in May. My children refuses to talk to me about it. I feel as if I am fighting this monster alone ( except I do have God who is always there.
  3. S

    Good dog companions for PALS

    My PALS wants to get a dog. I think he probably gets lonely being home alone while I work. Anybody know what type of dog would be best? I would prefer small, low maintenance as far as grooming and minimal shedding?!
  4. K

    Some thoughts

    Dear all, My name is Kay and I'm based in London. I am not an ALS sufferer but I found out about this disease by Anthony Carbajal's campaign to raise awareness about it. Most watch and even participate in the ALS ice bucket challenge but didn't take the time to actually understand the gravity of...
    • kay2017
    • Thread
    • age als angry awareness brain breathing bucket challenge death diagnosed equipment fingers heart hope ice ice bucket challenge insurance life lonely medical equipment research stages support technology treatments video wrong
    • Replies: 8
    • Forum: General discussion about ALS/MND
  5. L

    The universe keeps dishing it out.

    We recognized the first anniversary of Kathy's death on December 20. On january 23, the anniversary of her memorial, my father was admitted to the ER with internal bleeding. It was harrowing, as ER admissions can be. He lost half his blood volume. It's possible he had a stroke at that time. My...
    • Loverly
    • Thread
    • angry brother clothing dad death decline father health legacy life lonely memorial money sad stroke support work
    • Replies: 8
    • Forum: Past caregivers
  6. KatieNBoyd

    Anyone else finding stuff

    So, has anyone else had the "pleasure" (sarcasm) of finding things, notes, letter, photos, emails, and the likes while clearing out stuff. No I am not talking about High School stuff I am talking about things during your marriage/togetherness. Yep, such fun, (sarcasm again!) I feel like i...
  7. E

    Keeping Dad happy

    I am fairly new to this disease, my father was diagnosed on October 12. He has bulbar onset of ALS and is nonverbal. He has a Toni, so communications are possible. I'm afraid that I don't engage him enough. We watch tv and occasionally chat about things. My only concern is to make him happy, but...
  8. L

    A call out to CALS

    I am having a hard time. He sleeps, rests and lays in one room I sit in another. We live in a somewhat rural place no quick walks downtown. Not many friends around. Feeling isolated and lonely. Feel cut off emotionally and physically. Any suggestions or words of courage you could throw at me?
  9. P

    One of 'those' days.

    Hi All. I am so sorry I have not been visiting, touching base and offering support. I have been putting one foot in front of the other. After feeling slightly more positive at the 7 month point after losing Iven, I took a nose dive and have been struggling to keep my head above water (gee what's...
    • poppies
    • Thread
    • bed depressed fell foot lonely nose sad support wanted worried
    • Replies: 3
    • Forum: Past caregivers
  10. Lkaibel

    Personal Accounts and Other on ALS

    In an odd "coincidence" (I wonder if there is such a thing, really) about one year before my husband showed a single symptom of ALS, I started to poke around and learn more about the disease. I was inspired in part by my friend Lynn's husband's Dx. Wow, I thought, someone else with this? A long...
    • Lkaibel
    • Thread
    • age als back cals children dad diagnosed friend goodbye health home care lonely medical reading relative running scared symptom treatments
    • Replies: 2
    • Forum: Off topic everything
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