rilutek

  1. Will

    Substitute for Rilutek

    Rilutek is becoming too expensive for my PALS after 3 years. I know it is an antiGlutamate. Are there any dietary supplements that perform a similar task?
  2. G

    bitter taste on one side of my mouth

    Hello- I was wondering if any has had thrush and used flucanozole liquid to get rid of it and developed a nasty taste in their mouth? I have been on Deannes Protocol for two months and didn't notice it and Rilutek for one month and didn't notice it. It is really nasty and even brushing my...
  3. R

    ALS and nausea

    This morning (Japan Time), I typed in the title "ALS and nausea" and I was taken immediately to a Sarah who had asked the same question. Unfortunately it was posted in 2011. Much like Sarah my nausea didn't start until a month after I started with rilutek. I'm not scheduled to see my doc for...
  4. Y

    Riluzole (Rilutek) in ALS treatment

    Hi, My mother got recently diagnosed with ALS. Her doctor prescribed Riluzole (Rilutek). Is there any other newer/better medicine for ALS? Thank you.
  5. B

    Feeling Hopeless

    How do you get out of your own head? I was diagnosed a year ago and no longer walk...now I'm losing my left arm strength and assume my right will be going soon. For the most part I have been positive but I can't seem to shake the anxiety/fear/frustration etc. I am 50 and single and have moved...
  6. S

    EMG Update

    Hello, I posted a year ago when my father-in-law passed away from ALS in 2012. My thread was locked, so here is a new post. This post concerns my S/O who has had a second round of EMG tests (first round was a year ago). Family History of ALS with 2 family members: Father passed away from...
    • SZcat
    • Thread
    • advice als atrophy brother diagnosed diagnosis emg father foot foot drop hope mnd neurologist onset reading rilutek symptoms tests update
    • Replies: 2
    • Forum: Could this be ALS?
  7. E

    So far so good on the Mayo Clinic Acthar dose trial

    My husband is taking his daily injections of Acthar since early November, no side effects so far. It's too soon to tell if this drug is helping, but all his muscles remain strong (except his tongue), and his breathing is good (FVC 80%)! He will be coming up to his two year anniversary of...
    • ECpara
    • Thread
    • acthar breathing clinic diagnosis early fvc hope muscles progression rilutek slow progression symptoms tongue trial
    • Replies: 1
    • Forum: General discussion about ALS/MND
  8. Will

    Long Term Use of Rilutek

    Now that my PALS has passed the 3 year mark with Rilutek, I was wondering if there is any info on issues with LONG TERM use. There have been no side effects so far that we can tell, but he has developed some odd leg, thigh, knee and hip pains (sometimes burning, sometimes stabbing) lately.
  9. F

    1/6/2014 Protests are coming

    There are a group of Pals trying to organize protests throughout all of the United States on 1/6/2014. We believe these protests are necessary to achieve many different objectives and goals which are: Expose the incompetency of researchers in the field, Expose and trace where all this supposed...
  10. jellis86

    This forum is great, but some need to take a chill pill

    In the short time I have been a member of this forum, just over a year, I have noticed quite a change. At first people would give good advice and try and be as helpful as possible...(Those people are still on here but less of them). Lately I've seen the trend of trying to convince people what...
    • jellis86
    • Thread
    • advice als back bipap cals cure diagnosed diagnosis diet helpful money natural oil progression rant rilutek support
    • Replies: 9
    • Forum: Rants and raves
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