Marieb425
Distinguished member
- Joined
- Jun 24, 2022
- Messages
- 146
- Reason
- Lost a loved one
- Diagnosis
- 08/2022
- Country
- US
- State
- WA
- City
- On an island near Seattle
I don’t always reply but have been reading and thinking of everyone. It’s good to know about the power; we live in an area where power can go out for days (due to trees) and I was thinking we could need a generator for next winter.
I have a somewhat unrelated question. The feeding tube (Mickey type) was brought up by my husband’s neurologist and also the nutritionist/speech therapist at his last ALS clinic. I suspected this was coming because he has significant tongue weakness, has choked on water, and it takes him a long time to eat.
He’s not very open to it right now so I’m giving him some space. However my question, his neurologist said he would spend the night in the hospital after the procedure. This could be because we live in an area where if a major health situation occurs they medivac you to seattle in a helicopter (we live on an island). Is that why the doctor would suggest it? He’s young and all his respiratory tests are good (FVC when sitting up was 89%). I’m a little scared after reading some recent threads and I know he’ll be upset if he’s in significant pain for something he doesn’t want.
Thanks,
Marie
I have a somewhat unrelated question. The feeding tube (Mickey type) was brought up by my husband’s neurologist and also the nutritionist/speech therapist at his last ALS clinic. I suspected this was coming because he has significant tongue weakness, has choked on water, and it takes him a long time to eat.
He’s not very open to it right now so I’m giving him some space. However my question, his neurologist said he would spend the night in the hospital after the procedure. This could be because we live in an area where if a major health situation occurs they medivac you to seattle in a helicopter (we live on an island). Is that why the doctor would suggest it? He’s young and all his respiratory tests are good (FVC when sitting up was 89%). I’m a little scared after reading some recent threads and I know he’ll be upset if he’s in significant pain for something he doesn’t want.
Thanks,
Marie