Frustated with Excuses (Venting!)

[Chewy302]

Hi Chewy,

You're certainly not alone in feeling this way. I could probably have written this myself a few years ago before I had had much experience being a CALS and was trying to wrap my head around the changes in my PALS.

What jumped out at me in your post was 2 visits in the same day. All I could think was probably not going to happen. The fluctuating energy levels are hard to understand at first. You and your BF are still in the early stages of figuring out everything, what life post diagnosis is going to be like.

You've been with him for a few years so you'll know best whether this is him being him or something new. If he was already depressed, that to has an affect on energy levels.

I doubt you'll find many CALS who don't get frustrated from time to time for a variety of reasons. Feel free to vent away any time you need.

Paul

Thank you so much for understanding my need to vent I try not to upset him with my feelings very often because I know he feels guilty about not being about to do things the way he used to. He spent all day today with his dad doing lawn work, so I know he is VERY tired tonight.

 

[affected]

Vjeplt gus emm vji sitquptit, et zua dep tii xi xomm jimq epf taqqusv zua juxiwis xi dep.

Zua esi huoph vu piif vu tvesv qmeppoph epf PUX.

Iovjis zua xomm jewi vu mowi xovj jon us jot qesipvt xomm, epf pux ot vji voni vu hiv fidotoupt nefi. Ji xomm puv ci ecmi vu mowi emupi ev tuni quopv epf vjopht dep djephi taffipmz. Nezci sief vji tvodlz up epvodoqevusz qmeppoph.

Csievjoph velit ep ipusnuat enuapv ug ipishz gus QEMT. Jot tqiidj ot tmassoph, tu O dep vimm zua vjev tovvoph epf vemloph xovj qiuqmi xomm veli iwip nusi.

Ov't hsiev vjev zua jewi e tdoipdi cedlhsuapf et ov nez jimq zua vu miesp getv ecuav EMT epf xjev ot huoph vu ci piifif. Juxiwis, vjev piwis raovi qsiqesit at gus vji inuvoupem tofi ug vji onqedvt ug ov emm.

 

[Firefighter58]

O xuamf tez fsuq jon epf sap, ji tient vu ni vu ci e atis, epf vjev xomm upmz hiv xusti. O'n tasi xi emm lpux tuniupi moli vjev.
Em

 

[affected]

xux gosigohjvis vjev ot jestj pupi ug at lpux jon ev emm