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Thank you so much Dusty. I agree about the need to explore the "unlikely" brachial plexus diagnosed. I hadn't really thought about that vagueness until your post. I think it may have to do with lack of pain or sensory issues, no numbness or tingling, which is often a symptom of brachial plexus Neuropathy. But since there are outliers in all diagnosed maybe that could be me. Thanks...will ask some more questions.
 
Lyn I'm hearing you about your daughter, but in my case it's my husband. He is awesome don't get me wrong, but just too optimistic. He reckons that I am trying to plan too much too soon. I too don't have an official diagnosis, but the parts of my body that are crying out for a bidet don't know that!
One thing with this disease and its variants is that it is very hard to plan anything. A month ago I thought a bidet may be ages away, not imminent. We are also starting to plan a more user friendly kitchen for me. I'm tall so all our cupboards are high, I can no longer use these cupboards.
I too am trying to carry on like I don't have Mills (variant) but it's very hard to do when I have trouble doing everything!
Good luck to you Lyn, please keep us posted on progress with everything.
God bless, Janelle x
 
Thanks Green Queen. Off topic, but I'm in love with Australia and Australians. I've been there 6 times (so far) :). First visit was in 1982 when I spent 3 months traveling from Adelaide to cairns. Though never to western part. On my bucket list.
 
Awesome thing for the bucket list! You are very welcome here when you make it to WA...
J x
 
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