Saliva is SO bad! Radiation?

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ECpara

Senior member
Joined
Jan 7, 2012
Messages
605
Reason
Lost a loved one
Diagnosis
02/2012
Country
US
State
GA
City
Thomasville
My poor husband is having a terrible time managing his saliva. He gets Botox shots (an equivalent, better product actually) every two months. They increased his dosage by 50% last time but it has worn off and is such a problem. He also has a prescription for Dicyclamine, he takes two pills (crushed for his PEG) four times a day. And he constantly uses his suction machine. He's getting so desperate, tomorrow when he goes back for his next Botox shots (which they will increase 50% again) he is going to ask to have radiation next time. They told him (Mayo clinic) that radiation is a no return proposition. It completely dries your mouth out and you can never get it back. I say go for it, there are products for moisturizing the mouth. Are we wrong? Has anyone else had this done? Comments? He is miserable, poor guy.
 
I know someone in one of my FB groups had it. As far as I know he was happy with results
 
ECpara, is the problem just saliva, or does it turn to the thick mucous that makes him choke?
 
Yes, the mucous is a big problem, too. A related but separate problem - the mucous makes him choke, and he's always trying to clear his throat. But the saliva is pouring out of his mouth all the time. He can't smile or open his mouth without drooling, very embarrassing for him.
 
Don't know if it can be done but, I wonder if they could do a partial on it so that some of the glands are shut down while leaving enough to keep the mouth from drying out. Might be worth asking
 
I have neither first- or second-hand experience of this but I have seen THC suggested to lessen saliva.
 
Thanks GregK! I did some research and you are right. Unfortunately we live in GA, doc in FL, and it's not legal in either. Don't see any trips west in the near future! Today he had his Botox increased from 3750 to 5000, and he'll go back in a month instead of two. We shall see if this works!
 
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