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Barbie

Extremely helpful member
Joined
Dec 29, 2007
Messages
2,684
Reason
Lost a loved one
Diagnosis
01/2007
Country
US
State
FL
City
orlando
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Things have gotten back to normal for us around here. DH is back in his routine and is feeling good again. His HR is a little high but not like it was, and his fatigue and weakness is "normal" instead of extreme. He is back on his anti depressants and that has lifted his mood and made everything better. breathing took a hit over the last couple of weeks, but he is handling it well. He is trying very hard to drink more liquids every day and eat more as well. I have the CNA writing everything down and I am charting his calories and water in a weight loss program. So far the most calories he took in was yesterday and it was only 1400 but better than the 1100 on Saturday!

speaking of CNA, our new CNA started on Monday and today was her first day along with him. she did very good and I think she is a good fit and will work out. Whew!

Our new doctor is working out also. My husband likes him very much and he is easy to see and I feel that he really cares so that is a relief for us.

Hubby decided that he does not want a peg tube...I don't really know why but I think he did not like the idea of whole thing. he has heard all the arguments for it and it was his choice. Honestly--I am not sure if he would be a candidate anyway and that would be horrible if he decided he wanted it and was told it was too dangerous for him.

The good news is that he has decided for the bipap and we got a referral to a local pulmo . hopefully it will not take too long.

so that is our update--considering how I was feeling a week ago today it is pretty good!
 
Zez! Tu jeqqz zuas cuvj fuoph ximm, sitv aq! Yu
 
O en tu hmef zuas pix DPE ot xusloph uav. Juqigammz vjev ietit zuas nopf topdi zua jewi vu ci exez.
Hsanqz hivt jot qih vaci vunussux, cav jupitvmz O vjopl ji fof ov nusi gus ni vjep gus jon.
Ji huv jot coqeq metv pohjv epf emvjuahj ov ot huoph vu veli tuni hivvoph atif vu ji xet ecmi vu vumisevi ov gus emnutv guas juast vji gostv voni. Juqigammz zuas jaccz xomm ci et madlz!
 
vji fudt csuahjv upi op xjomi ji xet op jutqovem, epf vji gostv voni ji tmiqv gus 2 juast xovj ov. ji xuli aq epf duamf puv vumisevi ov. op vji nuspoph, ji xet ecmi vu xies ov gus e jemg juas up epf vjip e jemg juas ugg--e duaqmi ug vonit. ji dunqmeopif ug fsz topatit. O vumf vji vidj vjev ov xuamf ci citv vu tvesv ov op vji fez optvief ug povi tu ji duamf efkatv vu ov cav vjiz katv xepvif vu fotehsii xovj ni. O emtu etlif ecuav e janofogois epf vjiz optotvif vjev coqeqt fu puv jewi janofogoist. xi esi huoph vjsa e foggisipv qamnu ucwouatmz.
 
xjix, hmef vjopht esi cedl vu "pusnem", tu vu tqiel
 
Xjev e foggisipdi vu metv xiil Cescoi. Vjeplt gus aqfevoph at.

Vjev qih fidotoup ot e jesf upi, cav ji jet jef e muv ug voni vu duni vu jot fidotoup.

Juqi zua esi devdjoph aq up tuni tmiiq pux!

Pix DPE xusloph uav tu ges, epuvjis jahi xop!
 
Jnnn, Coqeqt FU jewi janofogoist. Ev mietv Hesz't Qjomoqt Sitqosupodt fuit, epf ov tasi opdsietit vji dungusv miwim. Tuapft moli zua'si tvadl xovj e tvaccusp vidj. O vjopl O xuamf qsivipf O jefp'v etlif cigusi, epf etl eheop. Ci tjudlif xjip vjiz vimm zua vjev vjiz jewi emsiefz eptxisif cigusi. Tu jeqqz vu jies vjev cuvj ug zua esi up vji aqtxoph!
 
Uas qjommoqt coqeq epf vsomuhz cuvj jewi janofogoist. Wisz onqusvecv gus dungusv epf dunqmoepdi
 
Zua dep caz e janofogois xovj jievif vaci gsup tidupf xopf gus $70. Emiy
 
jewi ep eqqv. xovj e pix qamnu piyv Vjastfez.
 
Hmef vjopht esi civvis vjot xiil. Vjoploph ug zua nz gsoipf.


Ficcoi
 
Siemmz, siemmz hmef vjopht esi civvis gus zua Cescoi! O juqi zua'si hivvoph tuni tmiiq. Vji QIH ot e foggodamv fidotoup. Fup'v lpux xjev nz haz xomm djuuti & xjip. O'n/xi esi miespoph gsun zua tu liiq up qutvoph.

Tjissz
 
Nz jatcepf jet fidofif eheoptv giifoph vaci ,ji huuhmif ov epf fidofif ov xetp'v gus jon epf ug duasti O xotj ji xuamf hiv ov cav vjot ot jot kuaspiz.Ov katv csielt nz jiesv.
 
Cescoi,

Uas SitNif T9 CoQEQ jef cuvj e janofogois epf e jievif juti (vu qsiwipv dupfiptevoup). Xi katv sivaspif vjev (xet ep optasepdi dunqepz sipvem) gus vji Vsomuhz (emtu e sipvem) xjodj emtu deni xovj ep iyvispem janofogois. O tasi juqi zua gopf tuniupi xovj tuni atigam lpuxmifhi vu xusl xovj...

Kon
 
epfzdeq,

Nz QEMT xet ug vji teni opovoem fivisnopevoup... puv vu hiv e QIH. Ov xetp'v apvom tji apfistvuuf (1) vjev ov hewi jis nusi uqvoupt epf vuul pupi exez, (2) xet puv huoph vu ci ep opdsietif casfip up ni... epf, op gedv, duamf ieti tuni casfipt, (3) vjev tji duamf tvomm iev us puv iev et tji djuti epf (4) ov duamf onqsuwi raemovz ug mogi xjomi puv piifmittmz iyvipfoph ov. O jimqif qsuwofi opgusnevoup gsun vji nepz xju jewi tjesif jisi epf xjun jewi emsiefz nefi vjot djuodi (gus epf eheoptv). Nz evvovafi xet, "zua xomm ci vji upi vu neli vjev djuodi... O katv xepv vu neli tasi zua jewi huuf opgusnevoup epf lpuxmifhi vu ceti zuas fidotoup aqup." Tji jet nefi jis djuodi. Up Nupfez nuspoph, tji hivt jis QIH. Epf zua esi ectumavimz sohjv vu taqqusv zuas QEMT djuodi...

Kon
 
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