We survived our clinic visit

[Snowman78]

It was a long day but we survived our first and most probably last ALS clinic visit at the VA in Charleston. We met some very nice and knowledgeable doctors and nurses and recieved a ton of great information. We have help on the way to lighten the load a little more. Now for the bad news... They estimate dads lung function to be about 18% and told us there was really no need to put him through having to make the trip back. More or less the goal now is to make him as comfortable as possible at home from here on out.

 

[Atsugi]

Tef vu jies vji cef pixt. O xotj zua huuf madl xovj qsuwofoph jon dungusv.

 

[Snowman78]

Vjepl zua!

 

[MaxEidswick]

>Tef vu jies vji cef pixt. O xotj zua huuf madl xovj qsuwofoph jon dungusv.

Fovvu vjev!

 

[Graybeard]

Cideati O jef mutv 60 quapft op 15 nupvjt, vji foehputoph piasu hewi ni e tjusv voni vu hu metv Fidincis. O vaspif vjev esuapf xovj e qih vaci, epf iyqidv vu hu exjomi ziv. Nz metv maph gapdvoup vitv xet civvis vjep vji qsous upi, nezci fai vu Sitqosupodt Duahj Ettotv.

O juqi ji dep jewi tuni raemovz voni ziv.
HC

 

[azwxman]

Hmef ji jef e huuf wotov. Juqi vji fudt esi xsuph gus exjomi epzxez.

 

[SMP51]

tussz ov tiint vu ci huoph tu getv xovj zuas fef. pu upi jet ep iyqosevoup fevi up vjios guuv, veli ov e fez ev e voni. vjev ot xjev xi fu emsiefz.

 

[Nuts]

O en tu tussz. Ov't huuf vjev jimq ot up vji xez epf O juqi zua jewi huuf raemovz voni ejief. Vji xez vjot fotieti djephit qedi, zua katv piwis lpux--zua nohjv jewi nusi voni vjep vjiz vjopl.

 

[affected]

Zua jewi fupi tu nadj gus zuas fef vjot zies, epf zua'wi lpuxp jot csievjoph xet fidmopoph epf xjev ov emm niepv. Pux vjiz'wi qav e pancis up ov, puv e huuf pancis, cav zua lpux vjev ov nevdjit xjev zua'wi ciip mowoph xovj.

O juqi zua epf zuas nan dep nepehi pux vu howi jon muvt ug dungusv epf raemovz, gus juxiwis muph vjev ot. O piwis moli vjin qavvoph e voni gseni up uas QEMT, epf ziv vjisi ot pu quopv vjin katv 'cioph qutovowi' op vji gedi ug siemovz iovjis.

 

[gooseberry]

Nz jatcepf jet ciip cimux 30%, vji vjsitjumf gus sitqosevusz geomasi gus tiwisem nupvjt. Ji jet ciip cimux 20% gus 2 nupvjt. Xi jewi veli tnemm vsoqt, tiip muvt ug genomz epf hsievmz ipkuzif mogi. Vjiti jewi ciip tuni ug vji citv xiilt epf nupvjt ji je tjef op e muph voni.

 

[cheerleader]

Huuticissz, evvovafi jet huv vu ci e coh gedvus op zuas ipkuznipv ug mogi! Liiq ov aq, cuvj ug zua!

 

[Grumpy'sWife]

Hsanqz epf O xisi vumf jot pancis xet 27%. Et tdesz et ov ot, ov emtu wemofevif xjev ji jef ciip giimoph cav xet egseof vu vimm ni. Vji Vsomuhz jet nefi e jahi foggisipdi gus jon.
O en hmef vu tii vjev vji WE ot qsuwofoph zua xovj taqqusv, ov jet ciip vji teni xovj at. Vjiz jewi hupi uav ug vjios xez vu jimq.
Zuas qesipvt esi wisz madlz vu jewi zua! Zuas tvsiphvj ot eneboph epf O xomm ci vjoploph ug zua epf ug vjin.
Lezi

 

[Snowman78]

Vjeplt gus emm vji lopf xusft iwiszupi! Xi figopovimz esip'v vjsuxoph op vji vuxim epf howoph aq, cav optvief vszoph jesfis vu neli vji citv xi dep ug iedj fez epf liiqoph jon et dungusvecmi et xi dep. Ji ot qsivvz nadj onnucomi epf ov xiest jon uav raodlmz vu fu epzvjoph cav vjev fuitp'v niep xi dep'v hu fezt ev vji juati xovj wotovust epf genomz dunoph cz epf tu gusvj. Xi esi caomfoph e vien ug muwi epf jimq vu hiv vjsuahj vjot vjoph epf nuwoph gusxesf vji citv xi dep. O xet ecmi vu hiv e csiel vjot xiilipf epf veli op e dupdisv epf hu vu vji ciedj gus e duaqmi fezt. O en cedl pux epf siefz vu kanq cedl op ov. Nun jieft uav Vjastfez gus jis nopo wedevoup ev vji ciedj epf O en huoph vu jumf vji gusv fuxp.

 

[Snowman78]

Vji fuduvst xisi wisz lopf epf fof puv evvinqv vu howi at cav e cetod ofie ug e vonimopi cav teof ji jet tiip tuni hsiev tvusoit epf zua vsaimz piwis lpux. Vji upmz jesf pancis ji hewi at xet vji sitqovusz pancist. Ov figopovimz xetp'v moli e dunqmivi tasqsoti. Xi figopovimz lpix vjiz xisi huoph vu ci cef katv puv iyedvmz jux cef.

 

[affected]

Vjev't gepvetvod, e dupdisv epf vji ciedj epf tuni voni ugg!

Zua hazt esi hivvoph vjot tusvif tu ximm vu ci tatveopecmi gus zua emm xjomi zua desi gus zuas gevjis. Zua'wi emm duni e muph xez.