Worried about Steve
- Status
- Joined
- Nov 5, 2009
- Messages
- 15,641
- Reason
- Lost a loved one
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
- City
- Seattle
Aussie,
I still don't understand why Jim's chance to get a tube is gone. If you have explored all the options, I don't want to open a wound, but people get RIGs with very low FVCs, lower than his, sounds like.
Best,
Laurie
I still don't understand why Jim's chance to get a tube is gone. If you have explored all the options, I don't want to open a wound, but people get RIGs with very low FVCs, lower than his, sounds like.
Best,
Laurie
- Joined
- Jul 25, 2015
- Messages
- 1,606
- Reason
- CALS
- Diagnosis
- 07/2015
- Country
- US
- State
- tx
- City
- Dallas
Becky, I want to thank you for your post. I missed it and am just now seeing it. You are such a wonderful wife and hearing inspiration from you means the world to me. Becky you keep Matt's dreams alive and you are so strong through it all while keeping a sense of humor
The past couple of weeks have been so hard for me. I have always been the strong one in my relationship but Steve has been by my side the past 17 years and supported me like no one has ever done. He let me be a strong and independent woman.
Watching what seems to be daily progression is so hard. We reflect off each other and I am also losing a part of me each day. Steve is now admitting to issues for the first time since diagnosis. His legs are now so week that he is now getting ready to give up walking. He is spending more time on the BI-PAP, sleeping more, has back aches and his progression has seemed to stepped up for the past couple of weeks.
I am leaving for California tomorrow for work and staying an extra couple of days in the San Francisco/Monterey area. My best friend is flying in for the weekend. I have mixed feelings with this trip. I have always wanted to visit this area, need some time to smile and have to go for work. Mike is here and takes very good care of Steve but I am so worried that something will happen while I am gone. I am so sad. I cant seem to get away from the grief. It is haunting me every moment he is no around.
I cant tell the CALS here enough how brave I think each one of you are.
The past couple of weeks have been so hard for me. I have always been the strong one in my relationship but Steve has been by my side the past 17 years and supported me like no one has ever done. He let me be a strong and independent woman.
Watching what seems to be daily progression is so hard. We reflect off each other and I am also losing a part of me each day. Steve is now admitting to issues for the first time since diagnosis. His legs are now so week that he is now getting ready to give up walking. He is spending more time on the BI-PAP, sleeping more, has back aches and his progression has seemed to stepped up for the past couple of weeks.
I am leaving for California tomorrow for work and staying an extra couple of days in the San Francisco/Monterey area. My best friend is flying in for the weekend. I have mixed feelings with this trip. I have always wanted to visit this area, need some time to smile and have to go for work. Mike is here and takes very good care of Steve but I am so worried that something will happen while I am gone. I am so sad. I cant seem to get away from the grief. It is haunting me every moment he is no around.
I cant tell the CALS here enough how brave I think each one of you are.
- Status
Similar threads
