Recent content by csommers

  1. C

    Interleukin-2trial

    do they still give it to you after the trial as compassionate use or expanded access? sounds like it really worked well for you!
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    Anyone currently on Nuedexta?

    oh, i just noticed you are just now taking it. i mistakenly thought you've been on it since feb. hope it works well for you🙏
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    Anyone currently on Nuedexta?

    hi, serenity. how's it going on nuedexta? did it help with speaking, if you had any speaking issues? i read that's a possible secondary effect.
  4. C

    Anybody have any luck in sourcing lactobacillus rhamnosus HA -114?

    I'm basing it on info here. https://pmc.ncbi.nlm.nih.gov/articles/PMC9729297/ My husband can't tolerate riluzole and radicava. He's progressing (bulbar) and I'm just trying to find things that may help. We contacted that company called Leland for the specific strain. You have to buy 85,000...
  5. C

    Anybody have any luck in sourcing lactobacillus rhamnosus HA -114?

    Thanks. There are many different strains and I'm specifically looking for HA114 which isn't on Amazon. Know where I can find that one?
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    Just started ANQUR trial - Anyone else on it?

    Hi, just curious to know if you feel it's helping slow the progression?
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    Anybody know what happened with AstroRX?

    https://alsnewstoday.com/stem-cell-gene-therapy-for-als/astrorx/ https://www.kadimastem.com/pipe-line
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    Just started ANQUR trial - Anyone else on it?

    hi, has is been long enough for you to notice any differences? any issues so far? hoping for all of us that it's working.. also, i noted this: "could potentially modify disease progression and improve outcomes in ALS patients who have a loss of STMN2 due to TDP-43 pathology" did you get genetic...
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    Anybody have any luck in sourcing lactobacillus rhamnosus HA -114?

    I saw an old thread that was closed. Any luck in getting it and not through a distributor?
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