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  • lgelb
    lgelb replied to the thread Leg weak for 06 months.
    Do not be so quick to connect saliva and cramps. Anxiety about one can easily lead to the other, and go back and forth.
  • lgelb
    lgelb replied to the thread Confused.
    Does he have a chair where he can elevate his legs, if they are swollen? In a power wheelchair the footrests can be adjusted differently...
  • lgelb
    lgelb replied to the thread Using iPad.
    Here is a good summary of the settings related to touch, Karen. https://support.apple.com/en-gb/guide/iphone/iph77bcdd132/18.0/ios/18.0...
  • lgelb
    lgelb replied to the thread Recently diagnosed- Deb's thread.
    Sorry to hear about your dad, Deb. You do not mention whether he is on BiPAP? That would be the usual first-line approach for breathing...
  • lgelb
    lgelb replied to the thread NIV Brands.
    I'm very sorry for your loss, Mia. Machines can malfunction even to the point of losing data, but if any action was taken on the...
  • lgelb
    lgelb replied to the thread Hello Everyone.
    An EMG does not have to be long to be definitive if the examiner knows what they are doing. It is a scarce resource so they are not...
  • lgelb
    Evan can send any mod contact info and we will forward it.
  • lgelb
    lgelb replied to the thread Confused.
    If you could post the de-identified EMG, we could probably be more helpful. But if I understand correctly, the baclofen was not a...
  • lgelb
    lgelb replied to the thread Back after 18 years!.
    Nikki said it all. No and yes.
  • K
    ktroopa replied to the thread Back after 18 years!.
    Thanks Nikki for replying and all that you do for members and the public. It is noble work. Does my leg condition point to ALS and...
  • K
    Hi all, Well, after 18 years, I'm back! I posted back in 2007 about neck, leg symptoms (pain, perceived weakness), and body wide...
  • swalker
    swalker replied to the thread NIV Brands.
    I have been using a resmed Astral 150 for over 5 years. I have 2 of them. I also have 2 external batteries. I am very happy with...
  • lgelb
    lgelb replied to the thread Veterans Clinical Trials.
    Getting veterans to support more research is a laudable goal. As Nikki points out, though, stacking the deck to have a greater % of...
  • lgelb
    lgelb replied to the thread Two recent studies.
    This is a rehash of tofersen, which is used only in SOD1 ALS -- a genetic variant.
  • lgelb
    lgelb replied to the thread Worsening Symptoms.
    Thank you for circling back, and I'm sure UCLA will be appreciative of your support. SSRIs can cause twitching, and they can also...
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