Latest activity
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Bblh8287 replied to the thread Early breathing difficulties.My FVC now is 77%, MIP 18%, MEP 27%. Uvula and velum very weak now, tongue fasciculations and weak. Primary striping wave and proximal...
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lgelb replied to the thread Waiting on tests and concerned with my symptoms.I can't recall a tight calf leading to drop foot. Widespread twitching argues strongly against ALS. Perceived weakness without clinical... -
lgelb replied to the thread Progressive symptoms since I last posted.Sometimes you have two things going on, and sometimes one affects the other. You could have a mild leg thing that iron deficiency...
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lisa g replied to the thread Summer preparedness.We have 3 generators, 1 for the pool, 1 for the house essentials and a portable one for my equipment. We also have an extra bipap.I am... -
lgelb replied to the thread Summer preparedness.Good point about devices -- I have a rechargeable brick for our phones that I keep charged since we don't get a lot of sun here.
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lgelb replied to the thread Power Wheelchair DME Recommendations.It depends on your plan's network and where you are exactly (for example, you will get way less willingness to come to you in certain...
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lgelb replied to the thread Wanted: Used Wheelchair Accessible Van in Seattle,WA area.I'd go to the big providers first -- they could have surplus inventory or leads. And of course post on Craigslist, NextDoor, Facebook...
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lgelb replied to the thread Bulbar vs GERD?.First off, their endo doesn't show what yours did. Second, they noticeably/clinically can't swallow as well as they used to. It's not...
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lgelb replied to the thread Outside help.It's more properly called "Hoyer style" or "floor lift" (vs. ceiling or gantry lift) bc Hoyer is now Joerns and that's just one brand...
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lgelb replied to the thread Outside help.Your local ALS United or ALSA chapter may have a short-term or indefinite loaner lift or you could post a want ad locally. If you need...
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lgelb replied to the thread Any advice very much appreciated, thank you!.If you are saying an ALS dx has been made before an EMG, that is surely not appropriate and I would take that up through your GP for an...
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lgelb replied to the thread Issues with dry swallowing and slurred speech.I don't think you are. But by all means, see your PCP who can baseline your speech and refer you to an SLP if needed. Many of us with...
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lgelb replied to the thread Bulbar vs GERD?.A gastroenterologist should be consulted to follow up the reactive changes, which may be GERD despite your lack of symptoms previously...
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KimT replied to the thread Summer preparedness.Thanks for the reminder, Laurie. Our power went out for three days last year during a hurricane. I didn't evacuate but I had backup... -
Seeing this article reminded me that hurricane/summer travel season is coming...with fewer resources available all around for people in...
