Recent content by downtown21

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    BulbarALS

    With research grant awards being terminated every single day, I think you’re going to see less and less studies enrolling.
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    I thought I was prepared

    @JAM thank you. Yes she did use an eyegaze device until a couple years ago when it got too difficult. I’d encourage trying them out and seeing what works, when your husband is ready to take that step.
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    I thought I was prepared

    Thank you for sharing your experience. Sorry I don’t have anything helpful to offer but reading others’ stories helps. My wife with bulbar onset is 39 and about 4 years in, and only has some slight eye movement left now.
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    Recently diagnosed Bulbar Onset Motor Neuron Disease

    Thank you for supporting vaccines and cutting through misinformation, lgelb. I completely agree.
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