Recent content by fo mnd slow pro

  1. fo mnd slow pro

    One of two disease diagnosed: MMN or MND

    Hi Mattshap123, I'm on a similar journey. Have had symptoms for 7,5 years, only some atrophy in groups of muscles in my left arm. I freaked out about the diagnosis as I didn't get enough info and my neurologist had gone on vacation. But eventually I was told the same thing: focal MND, lower...
  2. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    Ty ljlorie, for sharing! Sorry to hear about your father Daughter416! I wasn't able to reply since I've had a death in the family and was gone for the last weeks (when it rains it pours!) I've still been fighting a lot with anxiety and I'd like to give some updates just to document it for...
  3. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    Thank you Meyermihi for sharing! I spoke to my Neurologist today, he apologized for the lack of info and was adamant he didn't consider I was in any danger, hence the 6 month check in. I was told I might have some disability (left arm would get weaker, might spread to right arm etc) from this...
  4. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    I plan to get in touch with my neurologist first thing Monday! In the end, would a different MND change prognosis? Ty very much Nikki, it feels really good to be able to talk to people that can bring so much information. I've had so much anxiety, it's been crippling for both me and my wife...
  5. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    But next appointment is at the ALS clinic, so I'm not sure if there is any uncertainty on the diagnosis or just incredibly horrible communication skills.
  6. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    I'm sorry, I don't know if there is a difference between the two, from what I found MND is an umbrella term for the diseases which include ALS. And the prognosis is not that different. Am I barking up the wrong tree? Ty very much
  7. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    I'm sorry about the confusion I caused, I considered that being diagnosed with this meant that there is a standard set of steps taken. So the questions took me by surprise. I didn't even know the difference between and EMG and an NCS I don't have access to my records just yet, will look to get...
  8. IMG-20250226-WA0020.jpg

    IMG-20250226-WA0020.jpg

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    • Category: Newly diagnosed
  9. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    Yeah so I had multiple EMGs done on my arms, only ncs on my legs, as far as I can remember. On my calf I noticed a bulge, read online that is compensatory mechanism for when some neurons die and the rest try to take over.
  10. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    Yes, that for sure, and on my right arm as well.
  11. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    Ty! From what I gather he's the ASL expert in Montreal. I doubt he did an EMG on my legs, maybe I just don't remember. Anywho, looked back through pics and noticed that my calf changes were there about 2 years ago. I can't say I have actual weakness in it, it's still very strong, weaker than my...
  12. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    Ty Nikki and lgelb, I didn't have the needle test, only the surface shock test. Not sure if that would show anything. I'm not of Asian descent, though my neurologist did send to get another MRI to see if it's Hirayama. I sadly do not have access to my EMG results. I also have had very clear...
  13. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    Thank you so much for sharing! I'm really sorry to hear what you're going through, and you have all the best from my wife and me. I'm looking for people sharing their experiences of how the symptoms actually feel to help with anxiety and give some semblance of control. How obvious might they be...
  14. fo mnd slow pro

    Newly diagnosed, processing, looking for others experiences

    Hello, I'm a 38 male, diagnosed with "focal motor neuron disorder" that is "slow progressing" last Friday. My neurologist told me exactly this much and told me we'll see each other in 6 months and left on vacation. Needless to say I went on a spiral with my wife, seeing all our future plans...
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