My experience is somewhat similar to Shiftkicker. ALS clinic neurologist was bugging me to get a walker so reached out to the ALS Society and got a runaround in excess of 3 months. I discovered they're only a few hundred to buy so got my own. So to answer your question Nikki, yes there are...
We've all seen the glitz and glamour of the work being done by the ALS Society of Canada. My own experience with them was a massive disappointment ( detes on request) but I now wonder, are their others out there feeling disenchanted?