Recent content by Jimmyccorn

  1. J

    Early breathing difficulties

    Thanks Nikki. I am aware of the “no rules” rule 😆 and my brand new $40k Swiss made Nocsn ventilator ( free rental via Medicare/AARP Plan G) is a marvelous machine! I just spent $15k for a new roll in shower on thefirst floor and I want to live long enough to need it…..ALS is more unpredictable...
  2. J

    Early breathing difficulties

    Hi. I 67M here diagnosed last August. Still mobile, but left arm and hand most impacted where my onset was. March 18th I woke up with breathing issues. Got appointment with RT and my sitting FVC remained 66% but supine had falled to 55%. Now I am on a ventilator 9 hours a night with an hour or...
  3. J

    Diagnosed on 8/27/24

    Diagnosed on 8/27/24
  4. J

    Worried about progression

    Like most, my depression and anxiety went through the roof after Dx. I went on 40 mg of Paxil along with about 4 weeks of time and now I am so much better and balanced, especially emotionally.
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