kathrynslanier

I am still in the process of being fully diagnosed. I have a definite diagnosis of progressive bulbar palsy, and the doctor just told me that I also have both upper and lower motor neuron damage. I am expecting an ALS diagnosis, but it may turn out to be PLS. I'm just one year into this disease.
I have been working as a child therapist and opened my own private practice in 2020. I recently closed up shop though since I can no longer communicate. My tongue no longer works. I will be getting a feeding tube in July.
Location
USA
Reason
Other
Diagnosis
00/0000
Country
US
State
LA
City
Metairie
Occupation
Retired

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