Recent content by TLARRI1

  1. TLARRI1

    Bug bites after shower

    After I give my wife a shower she feels like mosquitoes are biting her all over especially her legs. Does anyone else experience this after a shower? It usually lasts about 15-20 minutes.
  2. TLARRI1

    Urgent care ?

    Kandy has all kind of skin rashes since ALS, we’ve tried steroid creams, antibiotics, but someone told us to try coconut oil, and to my surprise it had worked better than anything else. It won’t hurt to try.
  3. TLARRI1

    I thought I was prepared

    That was beautifully put. I share your thoughts about this horrible disease. It seems like this journey is getting more difficult every day, as I slowly watch my wife deteriorate. As hard as it is, and it’s hard, through this experience I have learned how much I truly love her, and cherish the...
  4. TLARRI1

    Voice App

    We just got the Tobi Dynavox Eye Gaze, looks pretty cool, but having a hard time getting started. We are waiting on Rep. to come in a couple of weeks to help out.
  5. TLARRI1

    A Couple of Tube Feeding Questions

    My wife is considering getting the feeding tube, but she is terrified of the thought of it maybe being painful, and uncomfortable. She does have anxiety issues. Can anyone help give me some tips on how this procedure affects someone?
  6. TLARRI1

    Voice Concerns

    My wife and I, reached out to ALS organization, and they set my wife up with a company that has Eye gaze technology equipment, and they came out to our house Tuesday of this week and set up the computer for the gaze technology and let her try it out and she did fantastic with it so at this point...
  7. TLARRI1

    Sorrow & Dissapointment

    Hello Johnny, I’m so, so sorry for the news that you guys got. It was just a few months ago on December 4, 2024, on my 58th birthday that my wife and I, received that very same news, that my wife has ALS. Fortunately, for her she doesn’t get nauseated that often but she has some problems with...
  8. TLARRI1

    My father was diagnosed with ALS six months ago.

    Hello, and I’m sorry to hear about your Dad’s diagnosis. My wife was diagnosed December 4,2024. So far she hasn’t experienced the symptoms that you are describing, like with the eyes discharging, and the burning. However, she hasn’t experienced had problems with her tongue feeling heavy and she...
  9. TLARRI1

    If you ever need to just vent or talk about anything just let me know I’m a great listener.

    If you ever need to just vent or talk about anything just let me know I’m a great listener.
  10. TLARRI1

    rapid development of ALS

    Hello, and I’m sorry to hear about your situation. Last April, my wife and I, were on vacation in Niagara Falls, then we went to New York City, for a few days. We both were walking around and having a great time. Fast forward to now, my wife can no longer walk, feed herself, or bathe herself. To...
  11. TLARRI1

    CALS Roll Call Continued

    So sorry to hear about what your family is going through right now. My wife was diagnosed with ALS, December 4, 2024. As of today she has lost her ability to walk, or bathe herself, or feed herself, I’m her primary caregiver. I know the importance of having a good support team. I want to be able...
  12. TLARRI1

    Bulbar onset disease

    I know this must be a very difficult situation for you and your family. However, if your mom has a good clear mind, then I respect her decision because ultimately it is the individuals right to choose. My wife and I, have had this conversation incase the time should come. She told me that she...
  13. TLARRI1

    Neuro observed tongue fasciculations, atrophy, abnormal EMG

    My wife started having issues in July of 2023, with her right hand being weak. It actually took a little over a year for the Doctors to actually diagnose her with ALS. The last test that she had that helped determine the decision was the EMG.
  14. TLARRI1

    Bulbar onset disease

    I’m so sorry to hear about your mom. If she’s not able to adequately eat enough nutrients because of her swallowing, then she is going to have to consider the feeding tube. My wife has ALS, and she is still able to eat certain foods, but we’re still considering having the feeding tube put in...
  15. TLARRI1

    Newly diagnosed, processing, looking for others experiences

    I’m sorry, I thought this was based on “Caring for People Forum”.
See more
Back
Top