ALS Support Community

RMuoio
RMuoio
Thanks for reaching out.

I finally got an MRI of my brain and neck, and the MRI was clear. However, during one of the scans of my brain, my entire back lit up with muscle spasms for the duration of the three-minute scan. None of the other scans of the brain produced such an effect. No doctor seems to see that as strange, even though I find it strange.
RMuoio
RMuoio
That said, following the MRI, I saw Dr. Katherine Widnell, a neurologist at UCLA. She did basic reflex tests on me, reviewed my blood work and my MRI report, and concluded I likely have Benign Fasciculation Syndrome (BFS). She scheduled me to get an EMG on March 31, though she suspects that the EMG will not show any abnormalities.
S
Seg81
Thank you for responding! I hope all goes well with the EMG!! I have had twitching all over that came out of nowhere about 5 weeks ago. I also have those hypnic jerks…. I have thought that my hand “feels weird” but not sure if it’s just because I’m hyper focused on everything and looking to see if new symptoms appear..
S
Seg81
I am being referred to neurology, and hoping to get some answers but I have gone down the google rabbit hole which has led to high anxiety and sleepless nights. :(
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