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  • Users: evansmom99
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  1. E

    Update on DH

    Hello all Well has been a busy few weeks. Saw a Dr for a 2nd opinion like he wanted and got the same answer with much explaination. Dr was great he pointed out that DH was yelling and pretty dowright mean to me and son. Of course he said no not now to meds, but was refered for Pallative...
    • evansmom99
    • Thread
    • 2nd opinion anger cry feeding feeding tube food frustrated hospice meds nursing home update wanted
    • Replies: 5
    • Forum: Current caregivers
  2. E

    Palative care? And some..

    :confused: My Husbands Dr made a referral for palative care and I have to say when I think of it I think about nursing home care. Currently my husband continues to loose the ability to talk and swallow without choaking. The other day I thought I would have to call 911 but he swore he was...
    • evansmom99
    • Thread
    • ability als angry back breathing confused dad dementia drugs family father fear feeding feeding tube fell friend frustrated home care hope hospice info life lift love mistake nursing home robert scared swallow
    • Replies: 17
    • Forum: Current caregivers
  3. E

    Some hard decisions made

    Hello all Staring out on a good point, my husband now understands he has ALS and that the diagnosis was not out of a hat or theory. One night I went over everything with him and explained all that I knew, he finally agreed to engage in support and work with his Dr's. and local ALS group...
    • evansmom99
    • Thread
    • ability als anger ball breathing dad dementia diagnosis eyes fear heart hospice mad night nurses peg problem support transfer work
    • Replies: 6
    • Forum: Current caregivers
  4. E

    Frustrated and afraid

    These last few months have been tough. My loving husband has become a angry hatelful man. He used to be my best friend and we could talk about anything. Now anything I say or do is wrong and met with anger. He has announced he does not have ALS or anything like that, he is not going to die...
    • evansmom99
    • Thread
    • als anger angry confused death dementia end of life fell friend frustrated life love money swallow vent wrong
    • Replies: 11
    • Forum: Current caregivers
  5. E

    Meeting with ALS Society on Friday need advice

    Hello I just wanted to ask for some tips on things I should ask the ALS Society rep when she meets with my family this Friday. I am at the point of feeling overwhelmed by questions and concerns and know I need to take it a question at a time. What are key things I should ask about? I...
    • evansmom99
    • Thread
    • advice als clinic denial diagnosis family fear problems questions speech speech therapy support swallowing therapy vent wanted work
    • Replies: 5
    • Forum: Current caregivers
  6. E

    New here

    :-(Hello Wish I could say I am glad to be here but am happy to find folks that know what i am going through. My DH was diagnosed last thursday with ALS. This road has gone on over a year starting with ruling out sinus infection, tumor, stroke, allergies. Finally with the testing of...
    • evansmom99
    • Thread
    • allergies als back crying denial diagnosed diagnosis fear love new here problem shoulder speech stroke support swallowing testing
    • Replies: 8
    • Forum: Current caregivers
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