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  1. C

    What happens with No interventions?

    My PALS adamantly wants NO interventions and has expressed his wishes in a legal document. He is at a point where he has been told to think about a feeding tube and bipap. He wants NOTHING. What now?
  2. C

    What stage are we in?

    I am new to this forum and I am looking for answers. My brother was diagnosed in Aug. 2015. I have taken the lead in coordinating his care. I suspect he is VERY far along in this disease despite the fact that 6 months ago he thought he'd just pulled a neck muscle while golfing. His doctor...
    • cpcopin
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    • age bipap brother bulbar diagnosed feeding feeding tube food help! hospice lead muscle onset
    • Replies: 10
    • Forum: Current caregivers
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