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  1. C

    Do I need more info or what do I do first and Moore Balance Brace?

    I previously posted that I thought the doctors could be wrong, apparently, they were not. Diagnosed with ALS per clinical exam only and sent for EMG afterwards to determine if PLS vs ALS, it was confirmed that it was ALS last week. At the appointment we asked if my symptoms could be caused by...
  2. C

    Why move forward? Non Western treatments?

    I have always been fiercely independent, I was just diagnosed with ALS, I fought it every step of the way. Was sure it was something else. I don't know how I feel, I've never been impressed with life in my 64 years but I know I have had fun. I've lost six significant others to various diseases...
  3. C

    Not sure what to think, I know I don't agree though and can't get any better answers

    I saw a Neurologist in February 2025, via video after an hour and a half drive who referred me to another Neurologist 3 hours away, who I saw last week. It took a long time 13 months, to get a suitable primary care physician, then a bunch of denied Neuro referrals. I live in a rural area so most...
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