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  1. drewidia

    Mitochondrial testing and future muscle biopsy

    So my results came back and there was a finding of unknown clinical significance he seems focused on - now wants a muscle biopsy too This all has to do he said with sporadic vs genetic als - I’m cool with doing it if it helps pay it forward The geneticist appt is going to be after the biopsy...
  2. drewidia

    Newly diagnosed FTD - MND (yes ALS)

    This is the one post one should never want to join but glad it exists, a bit nervous to post this but here it goes. (BTW this isn’t everything regarding symptoms, tests, etc., but enough to paint the picture.) They say hindsight is 20/20. I’m a 52-year-old male (with a wife who I’ve known for...
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