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  1. steve913

    ALS early symptom and progress update

    See UT San Antonio this Monday 16th, hopefully care team will be put in place Initial symptoms late oct 2024 left drop foot confirmatory ALS diagnosis May 2 Mayo clinic Still using walker What Ive done in last several weeks: 1 Installed 21 inch high toilet with Bidet system in master...
  2. steve913

    Atypical slow progession ALS , search for caregiver, meds update

    My symptoms started with left drop back in nov 2024 , i posted my story under newly diagnosed. I use a walker since late february 2025. i feel fatigue and unbalanced and am losing grip strength on left side. Who determines if you have slower progression Als ? Im assuming your care team at ALS...
  3. steve913

    newly diagnosed with ALS ,Follow up questions for experienced members and moderators

    I am educating my self about the progression of ALS, my previous post gave my initial story and diagnosis confirmation from Mayo Clinic May 1st. I'm interested in the FRS test 48 pt that ALS center of excellence will be doing with my team when assigned June 16th I believe it is to test rate...
  4. steve913

    Als diagnosis confirmed Mayo clinic Rochester Minn May 2

    i started with left foot drop started 5 months ago early november 2024. Unable to walk without walker left ankle also frozen with the footdrop by february Two weeks in hospital feb10th to 24th and under went Plex treatments Pletherisus plasma anti body exchange no improvement after 4...
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