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  • Users: lgelb
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  1. lgelb

    So I am anxious too

    No, not to the extent that shell is a tricky word to start with and others are not hearing problems. In speech problems related to ALS, others hear it, too.
  2. lgelb

    Unexpected Diagnosis

    I'm sorry to hear this news, Mumsie. Give yourself time to process before you make any major decisions, and we're here for any question, big or small. If the cramps are threatening your balance, you might consider a cane or rollator, and avoid stairs.
  3. lgelb

    Vacation

    It sounds like part of the barrier will be persuading her to use the wheelchair, which will provide many more opportunities for fun than if she is struggling just to get around. Like anywhere else, you have your pick of wheelchair-accessible parks, gardens, museums, sports events, concerts...
  4. lgelb

    Is it really Myopathy?

    An inflammatory myopathy is much better news than ALS -- generally more treatable. And the muscle biopsy will help confirm the diagnosis much better than we could.
  5. lgelb

    I’m waiting for my EMG and I’m driving myself crazy.

    You are still describing benign twitching, for me -- having some consistent sites but also some variability, and it also presents as more random and widespread. It is incorrect that it can only be localized to a few sites. The people you know do not span the whole of the condition of BFS, and...
  6. lgelb

    Lisa

    Lisa G.'s spirit and caring for others shone through in her posts. I am sorry she is gone but glad she went out on her own terms.
  7. lgelb

    Lease or buy van?

    If you don't go out a lot, occasional rentals might be a better deal, but you're the one to pencil that out. As for lease vs. purchase, given the depreciation for new vehicles as soon as you drive them out, I'd say there's a strong argument for leasing in this case.
  8. lgelb

    Symptoms ongoing for 3 weeks

    Occasionally, an injection goes slightly into the wrong spot and causes the issues that you describe. If that's the case here, it does gradually get better, but there is not much to do but keeping up with safe exercise and waiting it out. I would certainly let the office know.
  9. lgelb

    I don't want to fight this

    I'm sorry for what you're going through, Linda. You might want to have a look at this thread, which combines an argument against VSED with an alternative. https://www.alsforums.com/community/threads/hold-on-tight.41449/page-5#post-439286 This page also relates...
  10. lgelb

    Thoughts on declining feeding tube?

    Keep in mind that you can still eat by mouth with a tube so long as you're physically able, and that you control what goes into it (which could be the same food you used to eat, mostly, in cooked/blended form) even when you start using it. So depending on swallowing abilities, it might be seen...
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