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  1. C

    What happens with No interventions?

    Re: What happens with No inteventions? What about hospice and morphine?
  2. C

    What happens with No interventions?

    My PALS adamantly wants NO interventions and has expressed his wishes in a legal document. He is at a point where he has been told to think about a feeding tube and bipap. He wants NOTHING. What now?
  3. C

    What stage are we in?

    I am his medical proxy, his health PofA, his executor...the whole nine yards. I take him to every appointment, buy him all his equipment and have now hired him 24 hour help. He fell on my watch last week and I couldn't pick him so I brought in the round the clock help. He has done an advanced...
  4. C

    What stage are we in?

    Igeb - his decisions are based on the fact that he says every day is worse then the day before and he doesn't want to prolong his suffering. He is not married and has no children so I don't think he sees the sense in hanging on. I am watching him lose functionality daily. Two weeks ago he used...
  5. C

    What stage are we in?

    I am new to this forum and I am looking for answers. My brother was diagnosed in Aug. 2015. I have taken the lead in coordinating his care. I suspect he is VERY far along in this disease despite the fact that 6 months ago he thought he'd just pulled a neck muscle while golfing. His doctor...
    • cpcopin
    • Thread
    • age bipap brother bulbar diagnosed feeding feeding tube food help! hospice lead muscle onset
    • Replies: 10
    • Forum: Current caregivers
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