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  1. BetterTogether

    Just started ANQUR trial - Anyone else on it?

    @tho - thank you for taking part and let me know how you get on with the trial! @csommers - TDP43 protein misfolding and aggregation is very common in ALS, more than 95% of patients have it, so it’s a great target for a trial drug (I didn’t get screened for TDP, but there were a lot of other...
  2. BetterTogether

    Just started ANQUR trial - Anyone else on it?

    Just phase 1 unfortunately, though I think they call it “1b” as it’s dosing straight into ALS patients rather than healthy folks. But it’s still mostly testing for safety and tolerability at this stage.
  3. BetterTogether

    Just started ANQUR trial - Anyone else on it?

    Hi everyone, I was recently accepted onto the ANQUR clinical trial for QRL-201. It’s a double blind, placebo controlled trial involving a new drug administered via lumber puncturewhich targets a particular protein involved in TDP 43 issues. More info here for anyone interested: QRL-201 I’m...
  4. BetterTogether

    Anyone tried NanoIV?

    Hi all, I was diagnosed last June with limb-onset ALS. Nice to meet you all (virtually). Has anyone tried Nano IV with any success? There’s a couple of places here in the UK that offer it, plus several in the US, I believe. It’s an alternative therapy, so not to everyone’s taste and lacks...
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