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  1. O

    Diagnosed with PLS at 28, any advice?

    Hi, I got a second opinion in a different hospital and the diagnosis is somatization (I hope I find the correct translation), which is very different from PLS. The doctor did clinical exam, checking reflex and muscle strength. I did another EMG+NCV (whole body this time, only 3 muscles were...
  2. O

    Diagnosed with PLS at 28, any advice?

    Hi Susan, yes I had brain and cervical spine MRI. The cervical spine MRI is normal, but the brain MRI shows the iron level is high in a small area of my right brain according to the doctor. I also did lumbar puncture which seems to be useful to rule out MS, though the doctor never mentioned MS...
  3. O

    Diagnosed with PLS at 28, any advice?

    Thank you for replying to my post! I haven't and I should talk to a rheumatologist in the near future. Is muscle pain common for PLS, even in the early stage? I hope my progression remains slow and new drugs become available someday.
  4. O

    Diagnosed with PLS at 28, any advice?

    Hi everyone, I'm 28 years old and was diagnosed yesterday with PLS as the doctor said there's no LMN damage found in any tests. Baclofen is prescribed and now I'm in a wait-and-watch phase, going to the hospital every 1-2 months to check my muscle and strength. I'm in Tokyo by the way. My...
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