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  1. D

    Two recent studies

    Please provide more details about this study.
  2. D

    BulbarALS

    Eileen, I appreciate your information about the feeding tube. I have decided to have one performed as it takes so much effort to eat . In order to maintain my weight I feel I'm constantly concerned about my intake. On another subject, has anyone out there had luck getting into a stem cell...
  3. D

    Does environment cause/trigger ALS?

    Denise. How long did you have Bulbar symptoms before your diagnosis? I experienced slurred speech about 9 months before my Diagnosis of April 4, 2025. Part of the stress related to this horrible disease, is the wide variation in life expectancy. There is really no way to make long term plans...
  4. D

    BulbarALS

    Thank you Firefighter 58. Congratulations on your resilience. Were your initial symptoms Bulbar related? My speech and swallowing have definitely worsened in the past few weeks. Seriously considering the feeding tube, but psychologically not ready. Having difficulty coming to terms with having...
  5. D

    BulbarALS

    @TFB I'm debating getting the feeding tube even though it takes a lot of effort for me to eat at times. My EMG found very small deficits in my extremities. However, my speech and swallowing are my primary symptoms. Have you investigated clinical trials that might slow down your progession? I...
  6. D

    BulbarALS

    Thank you Irene for sharing your and your husband's ALS journey. Obviously, you handled it with courage and grace. I hope my husband and I can follow in your footsteps. My symptoms seemed to come up over night one night in August 2024 Woke up after having what I thought was a nightmare, but in...
  7. D

    BulbarALS

    Nikki J: Thank you for your reply. I have been taking Riluzole since my diagnosis. I haven't been told about nuedexta. I have my first visit with the Mobile, Al ALS clinic May 9. I will be sure to discuss it with the neurologist. Thanks for your suggestions and I will look through my old videos...
  8. D

    BulbarALS

    I was diagnosed with Bulbar ALS on April 4, 2925 . I spent 8 months with numerous Drs' visits with their numerous tests in an attempt to get a diagnosis. Finally a wonderful Dr. at Mayo in Jacksonville Fl provided me with that diagnosis. My symptoms had begun with slightly slurred speech in...
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