caregiver

  1. steve913

    Atypical slow progession ALS , search for caregiver, meds update

    My symptoms started with left drop back in nov 2024 , i posted my story under newly diagnosed. I use a walker since late february 2025. i feel fatigue and unbalanced and am losing grip strength on left side. Who determines if you have slower progression Als ? Im assuming your care team at ALS...
  2. C

    Questions to ask interviewing a "Live in " Caregiver

    Somebody please help I need a list of questions to ask potential caregiver who will live with me.
  3. Tomswife

    Grants to help with caregiver costs

    Some of the ALS ASSOCIATION Chapters have grant money to help PALS/CALS with the cost of caregiving. We received $2K from the NY Metro chapter. There was an application, and I had to submit detailed invoices that show per diem charges. It is possible that other ALS foundations can support...
  4. Jhettinger

    Caregiver Checklist for your use

    for your use
  5. Jhettinger

    Caregiver Shoes

    What are the best / safest shoes, my cg uses crocs. they are dangerous
  6. wtlpc22

    CAREGIVERS REFUSE OUTSIDE HELP

    . I need wisdom, making a decision, or some kind of change. It is out of love for my wife for 41 years. My daughter Hannah now 24, has devoted her life to caring for me. They have little energy to do anything else. That is what I am concerned about. I have lived 16 years with ALS DX JAN 2006 @...
  7. R

    Used Permobil M300 Powerchair

    Selling a used Permobil M300 powerchair. In good condition, wasn't used too long. Had a few adjustments made, such as caregiver joystick added to the back but this can be taken off. Located in Tucson, AZ, $1000
  8. Nikki J

    Website to look into possibly

    Wellspouse dot org. I saw it mentioned elsewhere. I didn’t register but it says it has a forum and I saw some links to articles It is website that is not disease specific for caregiver spouses and the many issues confronting them.
  9. S

    New caregiver

    So sad. Husband diagnosed end of December. He's very used to being in charge and making all the decisions. I am a RN/NP. So I know a bit about caregiving. He fights me on all the ways to do things. Slowly he is beginning to listen to me but it's frustrating. I only seem to cry when...
    • Stacygol
    • Thread
    • anxiety back caregiver caregiving cry diagnosed equipment meds new caregiver night respite sad sleep worry
    • Replies: 8
    • Forum: Current caregivers
  10. T

    "Important information" template?

    Hi all, I was wondering if anyone has a document/binder to share where all the important information one should know about one's pALS is in one place (contact info for doctors, nurses, etc.; medication list; etc.) I know we should probably have compiled such a thing already given that my...
    • Turtals
    • Thread
    • caregiver diagnosed friend information kids milestone nurses reading
    • Replies: 4
    • Forum: Current caregivers
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