diagnosed

  1. S

    Diagnosed yesterday. So many thoughts and feelings. Mother of two young ones.

    Emg confirmed widespread issues. Im 39. Two kids ages 4 and 7. Such a happy family and I never imagined this for us. It’s been a long week of going in and out of dissociation and hyper awareness. Disbelieving and back to planning. Trying to be present for the kids and husband but also feel so...
  2. R

    Recently diagnosed PLS

    A few weeks ago I was diagnosed with PLS variant. I was anticipating some sort of serious diagnosis but these are still hard words to get your head around. I have had significant breathing trouble and was started on a ventilator some months ago. I've had 2 opinions now from very senior and well...
  3. S

    Has anyone on here been diagnosed with ALS but turned out to be Lyme?

    Unfortunately on the 26th March this year I was diagnoses with ALS / MND we call it in the UK. I've been on here a few time. First in 2016 when my twitches started mostly in my legs and calf. The EMG then showed "nothing sinister". My muscle cramps and twitches started about 6-8 months after a...
  4. P

    Suspicious symptoms after COVID vaccine - officially ALS diagnosed 2 years later

    My brother, just 37-years-old, was recently diagnosed with familial ALS. We have one aunt that passed from ALS 15 years ago, but that was thought to be sporadic and ALS wasn't even on our radar. As many with this horrible disease try to do, we are racking our brains to potentially understand...
  5. L

    Told "probable" with strange onset

    Previous thread 33M diagnosed by neurologist as "probable" based solely on clinical exam and symptoms sent for follow ups to confirm and get treatment. Prior 1.5 years shortness of breath episodes during stressful situations. Would resolve quickly and never interfered with everyday...
  6. JJJeremy

    Recenty diagnosed and grateful for these forums

    Hello, I was recently diagnosed with ALS and am in the process of getting started on medications and getting acquainted with living with this disease. I've been perusing the forums and am feeling very grateful to all of you for sharing your stories, challenges, advice, and kindness. I hope to do...
  7. A

    Two Friends Diagnosed with ALS at about the same time??

    Hello everyone. I posted here a few months ago about my best friend who was diagnosed with ALS in January (limb onset, C9 positive). He is handling it well but, unfortunately, the progression is more rapid than we had hoped. He has now completely lost the use of his right arm, is having great...
  8. A

    Checking in (my PALS was diagnosed about 6 weeks ago)

    I posted for the first time about 6 weeks ago, when my best friend received his diagnosis. He is a central person in my life and like family to me (I am single), so this has been pretty devastating news for me as well as for him. To recap, his symptoms started about 2 1/2 years ago when he...
  9. G

    Newly diagnosed

    Any suggestions on how many calories a day a person with ALS should be taken in daily. My brother had his peg tube placed recently and has started on Jevity. He was is still eating but appetite has decreased and chewing is more difficult. I am worried that he is not getting enough calories to...
  10. J

    Awaiting diagnosis

    Hello. I started with foot drop about 6months ago. My left leg has gotten progressively worse and has moved to my R leg. Emg was bad showed decreased nerve conduction and muscle loss in both legs. I have brisk reflexes and positive Babinski on both sides. The neurologist agreed these...
    • Jarsmom
    • Thread
    • als diagnosed diagnosis emg foot foot drop muscle neurologist
    • Replies: 6
    • Forum: Could this be ALS?
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