insurance

  1. JAM

    Lost health insurance, ? On ACA

    Sorry for 2 posts in 1 day, but it has been a day :( We were notified today that we are no longer covered on my PAL’s private insurance plan bc my husband reveives Medicare. My husband, myself and our 24y/o were all covered. My 24 y/o has a job and is looking into whether he can get on their...
  2. C

    Long Term Care Insurance anyone using it?

    Is anyone currently receiving reimbursement from a LTC (Long Term Insurance) policy? I am interested in knowing if you do the reimbursement request or does the agency that you use does? Do they charge you a fee to bill the LTC company ? My agency bills the LTC but they want to charge a fee to...
  3. lgelb

    If you value clinical research, disease control, and/or patient care...

    You might want to dial up the US Capitol switchboard: 202 224 3121, ask for the office of your Senator or Congressional representative, and give whoever answers the phone a little ALS context for the forthcoming confirmation votes and other measures to come. Already, thousands of scientists in...
  4. M

    Insurance denied claims from months ago - lactose free formula

    Hi Everyone, Just wanted to share what happened to us related to my husband’s Liquid Hope formula. Last fall I checked in with the hospital that dispenses the formula/supplies and they verified the coverage and told me it was covered and what the estimated cost would be. I did not double...
  5. L

    Insurance for your powered wheelchair

    My PALS recently received his powered wheelchair. Thoughts on needing to add it to our homeowners or auto insurance policy? I know retail for the chair is $20000-25000, though Medicare paid for it. Who would pay to replace it if we had a car wreck or house fire, etc? Or am I overthinking...
  6. I

    Insurance Rejections

    My pals has had 2 big insurance rejections this week. The first was the ventilator. The insurance says no even though he qualifies bc his FVC(?) is below 50%. The pulmonologist asked for an AVAP ( not sure if that the right term) but insurance says my Pals only needs a bipap. The drs response...
  7. BlsdMama

    Accelerated death benefit / life insurance

    I have two policies and both have accelerated death benefit, meaning that I can collect half the policies before I die when I am deemed to have 12 months or less. I've been a very slow progressor, initially diagnosed with PLS, then SPS, then PLS again, and finally 1.5-2 years ago cementing the...
  8. J

    Multiple symptoms for months

    Well for starters I found this website in a state of my panic and have read others threads about similar symptoms in a search for reassurance. I have been very apprehensive about posting here because I know a lot of people are probably just overexcited or scared and have convinced themselves...
    • jm5834
    • Thread
    • cals clinical cramping cure emg family family history fatigue fingers heart hope insurance neurologist pain scared second opinion sleep speech symptoms treatments twitches twitching weakness website worried
    • Replies: 10
    • Forum: Could this be ALS?
  9. C

    Tongue fasciculations that I can see but can’t feel.

    Hello everyone, and thank you for your time to read this and respond. I will be making a donation when I get paid. I’m 28 years old and have had twitches for 3 months. And yes I read the thread that if I have twitches read this first. The problem is that I have terrible health insurance and...
    • Cynthiag887
    • Thread
    • back bfs clinical coughing fasciculations health insurance neurologist problem tongue tongue fasciculations twitches weakness work worried worries
    • Replies: 13
    • Forum: Could this be ALS?
  10. D

    Repeated denials for in home services

    I’m at my wits end here. PALS has almost no functional movement aside from head/upper torso and a few fingers. He uses his bipap about 20hrs a day. He can be left alone for an hour or so if he’s reading a book on his computer but he can’t move his hands so he’s stuck there if I’m not home...
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