ALS ?..or different neuropathy
- Thread starter memikee
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memikee
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- Sep 7, 2024
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- Learn about ALS
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- 00/0000
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- NY
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- cornwall
I know - and for the past year these battery of tests have been happening - only thing left was my 2 nd mri which clear ,as was my first mri
so i am now at the point where they have now ruled everything out
wait and see how symptoms progress before diagnosing with pls can happen
so i am now at the point where they have now ruled everything out
wait and see how symptoms progress before diagnosing with pls can happen
memikee
Member
- Joined
- Sep 7, 2024
- Messages
- 19
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- UK
- State
- NY
- City
- cornwall
leaving the group -
ive read way too many responses from people telling them they do not have als ,or mnd ..
well they may not have at that particular moment n time ,or they may actually indeed have it ,..once you have met one person with mnd ,you’ve met one person with mnd
if some people on here can categorically tell someone else they don’t have als .or mnd .then maybe they should
tell the worlds neurologists how easy it is ,and tell them the secret ..
emgs change,emg can be wrong ..
everyone is different,everyone symptoms are different..as are emgs ..
some people may well not have als .. but to tell them
in my humble option ,no one should say ‘you don’t have it .. because they may even if their symptoms and emg say otherwise .. it will be showing differently…
this site isn’t helpfull to me ,it isnt supportive for me.. one person (nikki) - who is very nice by the way - but is the only person who seems to be allowed
to talk to me … my neuro has told
me
it is likely i have mnd ,but unsure at this stage which .. he seems to think PLS
,but as i say ,that’s it ..
nothing ..
no help ,no support
,no interaction with others …
this is just my piece ,just my interpretation,just my feels..
i need to find a pls group ,or one that at least allows others to join in and talk
thank you and goodbye .
ive read way too many responses from people telling them they do not have als ,or mnd ..
well they may not have at that particular moment n time ,or they may actually indeed have it ,..once you have met one person with mnd ,you’ve met one person with mnd
if some people on here can categorically tell someone else they don’t have als .or mnd .then maybe they should
tell the worlds neurologists how easy it is ,and tell them the secret ..
emgs change,emg can be wrong ..
everyone is different,everyone symptoms are different..as are emgs ..
some people may well not have als .. but to tell them
in my humble option ,no one should say ‘you don’t have it .. because they may even if their symptoms and emg say otherwise .. it will be showing differently…
this site isn’t helpfull to me ,it isnt supportive for me.. one person (nikki) - who is very nice by the way - but is the only person who seems to be allowed
to talk to me … my neuro has told
me
it is likely i have mnd ,but unsure at this stage which .. he seems to think PLS
,but as i say ,that’s it ..
nothing ..
no help ,no support
,no interaction with others …
this is just my piece ,just my interpretation,just my feels..
i need to find a pls group ,or one that at least allows others to join in and talk
thank you and goodbye .
DW7186
Member
- Joined
- Jul 21, 2023
- Messages
- 27
- Reason
- DX MND
- Diagnosis
- 10/2023
- Country
- UK
- City
- Newcastle Upon Tyne
@memikee
MND's are a spectrum of very different diseases.
PLS at one end,can not be seen on an EMG, or diagnosed by it.
It's UMN problems only but observed clinically by brisk reflexes,hoffman and Babinski and spasticity. "True" PLS is not terminal.
LMN damage is always observed on an EMG well before atrophy or weakness are even felt. It show's by exluding any NCS abnormality and a very specific pattern.
Aytpical presentations (PLS on pure UMN clinical signs or pure LMN on EMG findings) Unfortunately take a "watch and wait" approach here in the UK anyway.
All the best
MND's are a spectrum of very different diseases.
PLS at one end,can not be seen on an EMG, or diagnosed by it.
It's UMN problems only but observed clinically by brisk reflexes,hoffman and Babinski and spasticity. "True" PLS is not terminal.
LMN damage is always observed on an EMG well before atrophy or weakness are even felt. It show's by exluding any NCS abnormality and a very specific pattern.
Aytpical presentations (PLS on pure UMN clinical signs or pure LMN on EMG findings) Unfortunately take a "watch and wait" approach here in the UK anyway.
All the best
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